Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"
Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show
Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step
Exploring The Intersection of Identity and SMA
#71: Interview with Kristen Resendez, SMA Parent and Advocate
Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients
Lung Health Declines in Step With Motor Loss in Types 2 and 3, Study Finds
Reflecting On The Insanity of 2020 and The People Who Got Us Through This Year
Spinraza’s Benefits Mild, Transient in Infant With Severe Type 0 SMA
Molecule Similar to Evrysdi But Possibly Safe at Higher Doses Identified
How An Urology Appointment Turned Into A Fiasco & Typing Strategies, Vitamin D and Friendsgiving
#70 - Discussing the JACO Robotic Arm with Ron Borgschulte
Muscle MRI Captures Spinraza’s Effects on Tissue Fibers in Type 3 Brothers
NICE Reviews UK Spinraza Reimbursement for SMA Type 3 Patients Unable to Walk
The Importance Of Balance While Maneuvering On Uneven Surfaces For People With SMA
Muscle-directed Therapy SRK-015 Improves Motor Function in SMA Types 2 and 3 & Hibernation in Winter
Evrysdi Approved in Brazil for Spinal Muscular Atrophy (SMA)
Spending Time In & Out Of You Chair So You Give Your Body The Balance It Requires & Managing Stress
#69 - Interview With Lamondre Pough
PAN Foundation Offers Financial Help for SMA Treatment & Routine Changes As Winter Sets In
Adults With SMA Who Sought Specialty Care After Spinraza Approval May Have More Severe Disease
Embracing The Imaginative Spirit of Halloween & Cold Feet, JACO Robotic Arm and Caregivers
‘Think 3 at 3 Months’ Drive Seeks to Raise Awareness of Infant Movement Milestones & PCA Services
SMA Type 3 Adults May Have Issues Regulating Component of Cell’s ‘Skeleton,’ Study Suggests
How Memories Of a Dying Shopping Mall Made Kevin Schaefer About Adapting to Change
# 68 - October Roundtable Discussion
4-aminopyridine Fails to Improve Muscle Function in SMA Type 3 Patients & New Service Dog
SMA Type 1 Infants Treated With Zolgensma Achieving Milestones, Data Show
Spontaneous Trips, Reading, Socially Distant Celebrations, Delayed Deliveries & More
Infants Receiving Evrysdi Continue to Improve and Achieve Motor Milestones
Novartis to Open, at FDA Request, New Trial of Zolgensma for Older Patients
How SMA Affects Your Ability to Draw, Treasuring Little Things & Setting Boundaries With Caregivers
#67 - Interview With Maylan Chavez
Spinraza Leads To Motor Gains Over Time in SMA Type 3 Adults
GridPad Trilogy Communication Device Aids People With Speech And Motor Disorders Who Have SMA
Kevin Schaefer Talks About How The Past Few Months Have Been And How He’s Adapted to a New Normal
Electric Bike Technologies Donates Liberty Trikes To Aid The Mobility Of Children With SMA
AveXis Now Known as Novartis Gene Therapies, Focus of Continuing Work
Eye Doctor Appointment Adventures, How Everything Takes Extra Effort In The World Of SMA & More
NICE Widens Its Zolgensma Appraisal Due to European Marketing Authorization
Activities Underway for Newborn Screening Awareness Month
Experiences With a BiPAP Machine And The Pros And Cons of Wearing One & Wardrobe Challenges
#66: Talking About Evrysdi, SRK-015, and Recent Columns
Nerve-Muscle Molecule May Be an SBMA Therapeutic Target & Getting a New Wheelchair and a Service Dog
Ohio Study Finds Zolgensma Safe and Effective, Particularly in Younger Infants
Comparing The Fictional Superhero Team The X-Men To The SMA Community & Getting Back To School
FDA Grants Rare Pediatric Disease Designation to SRK-015 for SMA & Going to The Bathroom With SMA
SMA Registries Offer “Real-World Experience” That Makes The Best Treatment Possible
A Digestive Dilemma & Some Of The Final Stories Featured in The 31 Days of SMA Campaign
#65 - Interview With Dwight Reed
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