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<a class="text-decoration-none" href="/posts/7322304-will-nih-and-nice-recommend-funding-of-spinraza-in-england-each-day-as-a-blessing"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Will NIH And NICE Recommend Funding of Spinraza in England? &amp; Each Day As A Blessing
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
12m
</span>
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&bull;
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<span><span class="js-time" data-epochtime="1563753600" data-format="short_date">Jul 22, 2019</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
12m
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7320569-mom-of-a-child-who-lived-through-death-with-sma-and-through-life-with-spinraza"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Mom of a Child Who Lived Through Death With SMA and Through Life With Spinraza
</h5>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1563494400" data-format="short_date">Jul 19, 2019</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7318743-zolgensma-helps-babies-treated-early-but-older-patients-may-also-benefit-2019-cure-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Helps Babies Treated Early But Older Patients May Also Benefit &amp; 2019 Cure SMA
</h5>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
15m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1563321600" data-format="short_date">Jul 17, 2019</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
15m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7317185-38-roundtable-discussion-discussion-for-july-2019"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/35129271/75x75/c 75w, https://audioboom.com/i/35129271/150x150/c 150w, https://audioboom.com/i/35129271/300x300/c 300w, https://audioboom.com/i/35129271/600x600/c 600w, https://audioboom.com/i/35129271/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #535351; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/35129271/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#38 - Roundtable Discussion - Discussion for July 2019
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In the latest episode of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale discuss updates regarding SMA therapies Spinraza and Reldesemtiv. Also, Kevin and columnist Brianna Albers share their experiences at the 2019 Cure SMA conference.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
40m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1563235200" data-format="short_date">Jul 16, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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40m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7316275-ncats-warns-that-rare-diseases-constitute-public-health-issue-going-with-the-flow"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
NCATS Warns That Rare Diseases Constitute Public Health Issue &amp; Going With The Flow
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how the National Center For Advancing Translational Studies, (NCATS), warns that rare diseases constitute a public health issue. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about going with the flow and living with SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its histo...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1563187916" data-format="short_date">Jul 15, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7314365-study-suggests-spinraza-is-safe-and-effective-in-adults-with-sma-negative-experiences-with-flying"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Study Suggests Spinraza Is Safe And Effective In Adults With SMA &amp; Negative Experiences With Flying
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss a recent study that suggests that Spinraza is safe and effective in adults with SMA. Also, Community Development Manager Kevin Schaefer reads from his latest column, in which he recounts a negative experience with flying.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being inve...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1562889600" data-format="short_date">Jul 12, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7312208-rare-case-of-severe-sma-in-india-the-cure-sma-conference-2019"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Rare Case of Severe SMA in India &amp; The Cure SMA Conference 2019
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a rare case of severe SMA in India, that was partly evident by bone fractures at birth. Also, Community Development Manager Kevin Schaefer talks about his experiences at the 2019 Cure SMA conference. Cure SMA is the largest SMA nonprofit organization, and this year’s conference took place in Anaheim, California.

Are y...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
12m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1562716800" data-format="short_date">Jul 10, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
12m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7310112-risdiplam-is-showing-promise-for-treating-sma-types-2-and-3-airline-companies-and-the-faa-updates"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Risdiplam Is Showing Promise For Treating SMA Types 2 And 3 &amp; Airline Companies And The FAA Updates
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Risdiplam is showing promise for treating SMA Types 2 and 3. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how airline companies, and the FAA, refuse to make it easier for those of us in wheelchairs to have the ability to fly like the able-bodied.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
12m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1562544000" data-format="short_date">Jul 08, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
12m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7308553-risdiplam-improves-survival-and-motor-functions-in-infants-with-type-1-sma-the-9th-birthday"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Risdiplam Improves Survival and Motor Functions in Infants With Type 1 SMA &amp; The 9th Birthday
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Risdiplam improves survival and motor functions in infants with Type 1 SMA. Also, Columnist Michael Casten reflects on his daughter&#39;s ninth birthday, and how far she&#39;s come since her initial SMA diagnosis.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1562284800" data-format="short_date">Jul 05, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7306585-sbma-patients-more-likely-to-be-affected-by-metabolic-disorders-going-to-faraway-coffee-shops"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
SBMA Patients More Likely To Be Affected by Metabolic Disorders &amp; Going To Faraway Coffee Shops
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a study that states that SBMA patients are more likely to be affected by metabolic disorders, including heart and liver disease. Also, Columnist Alyssa Silva writes about how spontaneous adventures to faraway coffee shops help her celebrate the good days with SMA.

Are you interested in understanding gene therapy? Expl...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1562112000" data-format="short_date">Jul 03, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7305416-37-interview-with-courtney-smith-and-trevor-rogerson"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/35067082/75x75/c 75w, https://audioboom.com/i/35067082/150x150/c 150w, https://audioboom.com/i/35067082/300x300/c 300w, https://audioboom.com/i/35067082/600x600/c 600w, https://audioboom.com/i/35067082/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #2c242e; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/35067082/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#37 - Interview With Courtney Smith And Trevor Rogerson
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 37 of the SMA News Today Podcast, host Kevin Schaefer interviews Courtney Smith and her boyfriend Trevor Rogerson. They live in Seattle, Washington, and Courtney has SMA Type 2.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseas...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
21m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1562025600" data-format="short_date">Jul 02, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
21m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7304297-zolgensma-extends-survival-in-sma-type-1-patients-years-after-dosing-how-will-sma-change"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Extends Survival in SMA Type 1 Patients Years After Dosing &amp; How Will SMA Change
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Zolgensma continues to extend survival in SMA Type 1 patients several years after dosing. Also, SMA News Today forums moderator DeAnn Runge shares her perspective with regards to how she sees SMA changing in the future, for those of us who suffer from this disease.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1561939200" data-format="short_date">Jul 01, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7302390-sma-patients-in-saskatchewan-canada-gained-wider-access-to-spinraza-recognizing-limitations"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
SMA Patients in Saskatchewan, Canada, Gained Wider Access to Spinraza &amp; Recognizing Limitations
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how SMA patients in Saskatchewan, Canada, have gained wider access to Spinraza. Also, Community Development Manager Kevin Schaefer talks about recognizing his limitations in his latest column.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1561680000" data-format="short_date">Jun 28, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7300213-spinraza-restores-motor-function-in-children-with-late-onset-sma-kevan-chandler-s-book"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Spinraza Restores Motor Function in Children With Late Onset SMA &amp; Kevan Chandler&#39;s Book
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a long-term trial that states how Spinraza was found to improve and restore motor function in children with late onset SMA. Also, Community Development Manager Kevin Schaefer talks about Kevan Chandler&#39;s latest book, which is in stores now. Chandler is an author and nonprofit founder, who has SMA.

Are you interested i...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1561507200" data-format="short_date">Jun 26, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7297514-high-intensity-training-improves-fitness-while-safe-for-sbma-patients-tips-for-spinraza-treatments"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
High Intensity Training Improves Fitness While Safe for SBMA Patients &amp; Tips for Spinraza Treatments
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss a study that suggests how high intensity training improves fitness while being safe for patients with spinal bulbar muscular atrophy (SBMA). Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses 4 tips that can make your upcoming Spinraza treatments easier.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information a...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1561334400" data-format="short_date">Jun 24, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7295629-study-suggests-parents-need-supportive-care-with-children-transitioning-to-wheelchairs-spinraza"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Study Suggests Parents Need Supportive Care With Children Transitioning To Wheelchairs &amp; Spinraza
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss a recent study that suggests how parents need supportive care as their children transition to wheelchairs. Also, Community Development Manager Kevin Schaefer talks about how Spinraza has affected his head and neck control in his latest column.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history an...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1561075200" data-format="short_date">Jun 21, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7293417-spinraza-users-share-stories-in-biogen-s-webcast-swimming-pool-lifts-and-disability"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Spinraza Users Share Stories in Biogen&#39;s Webcast &amp; Swimming Pool Lifts and Disability
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how some Spinraza users shared their stories in a Biogen webcast on how they went from a gut wrenching diagnosis to a wonderful drug. Also, Community Development Manager Kevin Schaefer reads from a forum topic about swimming pool lifts for people with disabilities.

Are you interested in understanding gene therapy? Exp...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1560902400" data-format="short_date">Jun 19, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7292479-36-roundtable-discussion-discussion-for-june-2019"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34999307/75x75/c 75w, https://audioboom.com/i/34999307/150x150/c 150w, https://audioboom.com/i/34999307/300x300/c 300w, https://audioboom.com/i/34999307/600x600/c 600w, https://audioboom.com/i/34999307/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #d5cebe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34999307/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#36 - Roundtable Discussion - Discussion for June 2019
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 36 of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale discuss the FDA-approval of AveXis’ drug Zolgensma, and related news stories. We also look at some of our recent columns and forum posts, and share our thoughts. Listen here, and be sure to subscribe to the podcast.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful informatio...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
35m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1560816000" data-format="short_date">Jun 18, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
35m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7291128-nonprofit-group-raising-awareness-for-rare-diseases-in-india-sma-teaching-patience"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Nonprofit Group Raising Awareness for Rare Diseases in India &amp; SMA Teaching Patience
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how a nonprofit group is working to raise rare disease awareness in India. Also, SMA News Today forums moderator DeAnn Runge shares her perspective regarding how living with SMA has taught her the meaning of patience.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investig...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1560729600" data-format="short_date">Jun 17, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7289014-study-on-the-underlying-cause-of-motor-neuron-degeneration-in-sbma-getting-blood-drawn"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Study on the Underlying Cause of Motor Neuron Degeneration in SBMA &amp; Getting Blood Drawn
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss a recent mouse study that explores the underlying cause of motor neuron degeneration in SBMA. Also, Community Development Manager Kevin Schaefer talks about finding the sweet spot, when it comes to getting blood drawn and positioning in his wheelchair.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its h...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1560470400" data-format="short_date">Jun 14, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7286862-pals-is-offering-free-flights-to-rare-diseases-patients-head-and-neck-control-with-spinraza"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
PALS Is Offering Free Flights To Rare Diseases Patients &amp; Head And Neck Control With Spinraza
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Patient Airlift Services (PALS) uplifts the spirits of rare disease patients by offering free flights. Also, Community Development Manager Kevin Schaefer talks about how his head and neck control have improved since he started receiving Spinraza.

Are you interested in understanding gene therapy? ExploreGeneTherapy...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1560297600" data-format="short_date">Jun 12, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7284426-zolgensma-is-helping-babies-to-breathe-and-sit-on-their-own-keep-improving-your-life"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Is Helping Babies To Breathe And Sit On Their Own &amp; Keep Improving Your Life
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how ZOLGENSMA is helping treated babies to breathe and sit on their own. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how his best friend inspired him to continue to improve and enrich his life.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1560124800" data-format="short_date">Jun 10, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7282723-changes-in-bladder-and-the-colon-may-underlie-gastrointestinal-issues-in-sma-medical-advancements"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Changes in Bladder and the Colon May Underlie Gastrointestinal Issues in SMA &amp; Medical Advancements
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss a recent study that suggests how certain changes in bladder and the colon, may underlie gastrointestinal issues in SMA. Also, Community Development Manager Kevin Schaefer reads from his latest column about what medical advancements mean for adults with SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1559865600" data-format="short_date">Jun 07, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7280632-early-non-neuromuscular-symptoms-and-the-lack-of-smn-protein-zolgensma-versus-spinraza"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Early Non-Neuromuscular Symptoms And The Lack of SMN Protein &amp; Zolgensma Versus Spinraza
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a potential relationship that was found between early non-neuromuscular symptoms and the lack of SMN protein in SMA patients. Also, Community Development Manager Kevin Schaefer reads from a recent post in the SMA News Today forum regarding the recent FDA-approval of Avexis&#39; Zolgensma, and we explain the key differences...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1559692800" data-format="short_date">Jun 05, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7279464-35-interview-with-mike-blakey"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34930987/75x75/c 75w, https://audioboom.com/i/34930987/150x150/c 150w, https://audioboom.com/i/34930987/300x300/c 300w, https://audioboom.com/i/34930987/600x600/c 600w, https://audioboom.com/i/34930987/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #53514a; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34930987/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#35 - Interview With Mike Blakey
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 35 of the SMA News Today Podcast, host Kevin Schaefer interviews Mike Blakey from Gainesville, Florida. Mike is a part-time CPA and attorney, and he has SMA Type 3.&quot;

Photo Contributed by Mike Blakey

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treat...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
36m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1559606400" data-format="short_date">Jun 04, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
36m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7278570-active-game-makes-monitoring-motor-function-fun-life-expectancy"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
ACTIVE Game Makes Monitoring Motor Function Fun &amp; Life Expectancy
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how a videogame by the name of ACTIVE, makes it more fun for patients to monitor their motor function. Also, SMA News Today forums moderator DeAnn Runge, shares her perspective regarding life expectancy while living with spinal muscular atrophy.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1559520000" data-format="short_date">Jun 03, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7276445-sma-patients-mothers-feel-better-after-engaging-in-social-activities-home-alone-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
SMA Patients&#39; Mothers Feel Better After Engaging In Social Activities &amp; Home Alone With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how mothers of SMA patients feel better after engaging in social and leisure activities. Also, Community Development Manager Kevin Schaefer reads from his latest column, about staying home alone when you have SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1559260800" data-format="short_date">May 31, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7274304-saudi-arabian-doctors-need-to-be-more-aware-of-guidelines-benefits-of-eye-tracking-tech"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Saudi Arabian Doctors Need To Be More Aware of Guidelines &amp; Benefits of Eye Tracking Tech
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Saudi Arabian doctors need to be more aware of guidelines and new care for SMA. Also, Community Development Manager Kevin Schaefer reads from a recent post in the SMA News Today forums that describes the benefits of eye tracking technology for people with disabilities.

Are you interested in understanding gene ther...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1559088000" data-format="short_date">May 29, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7272215-zolgensma-is-the-2nd-fda-approved-treatment-for-sma-speech-generating-devices-for-children"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
ZOLGENSMA Is The 2nd FDA Approved Treatment For SMA &amp; Speech Generating Devices For Children
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, reads from an article published on the SMA News Today website regarding the official approval of ZOLGENSMA as the 2nd FDA approved treatment for spinal muscular atrophy. Also, we discuss a parent survey that showed how speech generating devices provide benefits for children with SMA Type 1.

Link to article regarding FDA approva...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
17m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1558915200" data-format="short_date">May 27, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
17m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7270394-from-pediatric-to-adult-care-for-sma-patients-getting-an-accessible-hotel-room"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
From Pediatric to Adult Care for SMA Patients &amp; Getting an Accessible Hotel Room
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how a study highlighted the difficulties of transitioning from pediatric to adult care for SMA patients. Also, Community Development Manager Kevin Schaefer reads from his latest column, in which he describes the challenges of acquiring an accessible hotel room.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, includ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1558656000" data-format="short_date">May 24, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7268076-type-2-sma-patients-are-doing-well-with-zolgensma-regarding-motor-milestones-home-alone-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Type 2 SMA Patients Are Doing Well With Zolgensma Regarding Motor Milestones &amp; Home Alone With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how well Type 2 SMA patients are doing regarding motor milestones and safety concerns regarding taking Zolgensma. Also, Community Development Manager Kevin Schaefer reads from a forum topic about staying home alone when you have SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1558483200" data-format="short_date">May 22, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7266987-34-roundtable-discussion-discussion-for-may-2019"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34703361/75x75/c 75w, https://audioboom.com/i/34703361/150x150/c 150w, https://audioboom.com/i/34703361/300x300/c 300w, https://audioboom.com/i/34703361/600x600/c 600w, https://audioboom.com/i/34703361/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #352d28; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34703361/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#34 - Roundtable Discussion - Discussion for May 2019
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 34 of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale talk about the latest SMA news and perspectives from May 2019. Topics include clinical trial updates from the 2019 American Academy of Neurology (AAN) Annual Meeting, as well as some of our recent forum posts and columns.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful info...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
28m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1558396800" data-format="short_date">May 21, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
28m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7265719-protease-inhibitors-show-potential-to-treat-sma-by-raising-smn-levels-physical-and-inner-strength"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Protease Inhibitors Show Potential to Treat SMA by Raising SMN Levels &amp; Physical and Inner Strength
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Protease Inhibitors show potential to treat SMA by raising SMN levels. Also, SMA News Today forums moderator DeAnn Runge shares her perspective regarding not only physical strength, but inner strength as well.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1558310400" data-format="short_date">May 20, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7264101-upper-survival-rate-for-adults-and-children-with-neuromuscular-disorders-being-kind"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Upper Survival Rate For Adults And Children With Neuromuscular Disorders &amp; Being Kind
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how the survival rate is up for adults and children with neuromuscular disorders. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how showing respect and being kind, can improve not only your own life, but the lives of others.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, includ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1558051200" data-format="short_date">May 17, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7261688-study-on-how-leuprorelin-acetate-reduces-swallowing-dysfunctions-in-sbma-unique-interactions"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Study on How Leuprorelin Acetate Reduces Swallowing Dysfunctions in SBMA &amp; Unique Interactions
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a study that finds how Leuprorelin Acetate may reduce swallowing dysfunctions in SBMA patients. Also, Community Development Manager Kevin Schaefer reads from his latest column, in which he describes how having SMA has sparked unique interactions with people.

Are you interested in understanding gene therapy? ExploreGen...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1557920036" data-format="short_date">May 15, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7259290-mda-conference-brought-neuromuscular-experts-together-what-to-ask-about-zolgensma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
MDA Conference Brought Neuromuscular Experts Together &amp; What To Ask About Zolgensma?
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how the MDA conference brought neuromuscular disease experts together to share a new era in treatments. Also, Community Development Manager Kevin Schaefer talks about what questions adults with SMA should ask in regards to Zolgensma.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it i...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1557705600" data-format="short_date">May 13, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7257482-better-screening-techniques-improved-advancements-in-sma-treatments-knowing-your-limitations"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Better Screening Techniques Improved Advancements in SMA Treatments &amp; Knowing Your Limitations
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how better screening techniques have improved advancements in SMA treatments. Also, SMA News Today forums moderator DeAnn Runge, shares her perspective regarding knowing your limitations while living with SMA, and not letting these limitations dictate how you live.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, in...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1557446400" data-format="short_date">May 10, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7255050-brexit-can-have-real-effects-for-uk-rare-disease-patients-loving-physical-therapy"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Brexit Can Have Real Effects For UK Rare Disease Patients &amp; Loving Physical Therapy
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Brexit could have real effects for UK rare disease patients. Also, Community Development Manager Kevin Schaefer reads from his latest column, in which he talks about how he’s come to love physical therapy.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene t...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
13m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1557273600" data-format="short_date">May 08, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
13m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7252738-valproic-acid-improves-gross-motor-function-not-respiratory-function-new-zolgensma-forum"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Valproic Acid Improves Gross Motor Function, Not Respiratory Function &amp; New Zolgensma Forum
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Valproic Acid improves gross motor function, but not respiratory function in SMA patients. Also, Community Development Manager Kevin Schaefer introduces a forum dedicated to Zolgensma, a gene therapy designed to treat SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1557100800" data-format="short_date">May 06, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7252737-33-interview-with-john-scurto"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34791184/75x75/c 75w, https://audioboom.com/i/34791184/150x150/c 150w, https://audioboom.com/i/34791184/300x300/c 300w, https://audioboom.com/i/34791184/600x600/c 600w, https://audioboom.com/i/34791184/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a83ea; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34791184/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#33 - Interview With John Scurto
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 33 of the SMA News Today Podcast, host Kevin Schaefer interviews John Scurto from Boca Raton, Florida. John is a senior at Florida Atlantic University, studying business management, and he has SMA Type II.”

Photo Contributed by John Scurto

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and h...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
30m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1557100800" data-format="short_date">May 06, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
30m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7250865-cure-sma-and-ppmd-join-prometheus-research-in-data-partnership-the-right-aid-for-your-kid"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Cure SMA And PPMD Join Prometheus Research in Data Partnership &amp; The Right Aid For Your Kid
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Cure SMA and PPMD join Prometheus Research in a data collection partnership. Also, Community Development Manager Kevin Schaefer shares tips for parents about finding the right aid for their child with SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1556841600" data-format="short_date">May 03, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7248790-spinraza-could-help-with-skin-lesions-tips-on-finding-aids-for-children-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Spinraza Could Help With Skin Lesions &amp; Tips On Finding Aids For Children With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how skin lesions in an infant with SMA Type 1, were cured after their Spinraza treatment. Also, Community Development Manager Kevin Schaefer shares tips for parents about finding the right aid for their child with SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information abo...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1556668800" data-format="short_date">May 01, 2019</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7246278-sma-newborn-screening-expands-with-mandatory-screening-our-decisions-affect-those-around-us"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
SMA Newborn Screening Expands With Mandatory Screening &amp; Our Decisions Affect Those Around Us
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how SMA newborn screening is expanding as more states enact mandatory screening. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how important it is to remember how our decisions affect those who live around us.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
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<span><span class="js-time" data-epochtime="1556496000" data-format="short_date">Apr 29, 2019</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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11m
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<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7244815-why-sma-patients-don-t-need-higher-radiation-doses-in-ct-guided-spinraza-injections-new-column"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Why SMA Patients Don’t Need Higher Radiation Doses in CT-Guided Spinraza Injections &amp; New Column!
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss a study that explains why SMA patients don’t need higher radiation doses in CT-guided Spinraza injections. Also, Community Editor Kevin Schaefer introduces a new column by Katie Napiwocki called “A Wildflower in the Wheelderness.” Kevin reads an excerpt from this column, and invites listeners to check it out on SMA News Today.

Are you interested in understanding gene therapy? Explor...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
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&bull;
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<span><span class="js-time" data-epochtime="1556150400" data-format="short_date">Apr 25, 2019</span></span>
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7m
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</a></div>
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<a class="text-decoration-none" href="/posts/7242281-how-moral-dilemmas-complicate-treatment-of-rare-diseases-making-big-occasions-inclusive"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Moral Dilemmas Complicate Treatment of Rare Diseases &amp; Making Big Occasions Inclusive
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how moral dilemmas complicate treatment of rare diseases. Also, Community Editor Kevin Schaefer reads from his latest column, in which he describes making big occasions inclusive for people with disabilities.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene th...
</div>
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10m
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<span><span class="js-time" data-epochtime="1556064000" data-format="short_date">Apr 24, 2019</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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10m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7239751-new-endurance-test-can-measure-fatigue-in-types-2-3-4-sma-patients-accomplishing-goals"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
New Endurance Test Can Measure Fatigue in Types 2, 3, &amp; 4 SMA Patients &amp; Accomplishing Goals
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how a new endurance test can measure fatigue in types 2, 3, &amp; 4 SMA patients. Also, SMA News Today forums moderator DeAnn Runge shares her perspective on accomplishing your goals while living with SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the tre...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
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<span><span class="js-time" data-epochtime="1555891200" data-format="short_date">Apr 22, 2019</span></span>
</div>
</div>
</div>
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10m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7238322-britain-pushes-to-make-spinraza-available-travel-and-socializing-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Britain Pushes To Make Spinraza Available &amp; Travel and Socializing With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how the British MP is pushing to make Spinraza available for SMA patients. Also, Community Editor Kevin Schaefer reads from his latest column, in which he describes how SMA has affected the way he travels and socializes.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being inves...
</div>
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9m
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<span><span class="js-time" data-epochtime="1555545600" data-format="short_date">Apr 18, 2019</span></span>
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<a class="text-decoration-none" href="/posts/7235808-32-roundtable-discussion-discussion-for-april-2019"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34703361/75x75/c 75w, https://audioboom.com/i/34703361/150x150/c 150w, https://audioboom.com/i/34703361/300x300/c 300w, https://audioboom.com/i/34703361/600x600/c 600w, https://audioboom.com/i/34703361/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #352d28; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34703361/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#32 - Roundtable Discussion - Discussion for April 2019
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 32 of the SMA News Today Podcast, Community Editor Kevin Schaefer and Multichannel Content Director Michael Morale talk about the top news stories from April 2019. This episode covers newborn screenings, an experimental video game that could test the motor function in people with SMA, and some of our recent columns and forum posts.

Listen to the episode here, and be sure to subscrib...
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29m
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<span><span class="js-time" data-epochtime="1555459200" data-format="short_date">Apr 17, 2019</span></span>
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29m
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<a class="text-decoration-none" href="/posts/7235807-phase-2-trial-planned-for-srk-015-after-positive-phase-1-on-land-versus-aquatic-therapy"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Phase 2 Trial Planned for SRK-015 After Positive Phase 1 &amp; On-Land Versus Aquatic Therapy
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how a phase 2 trial is planned for SRK-015 in SMA patients after positive phase 1 data was reported. Also, Community Editor Kevin Schaefer talks about trying on-land physical therapy, and how it compares to his usual aquatic therapy.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it i...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
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<span><span class="js-time" data-epochtime="1555459200" data-format="short_date">Apr 17, 2019</span></span>
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</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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10m
</div>
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7233805-spinraza-and-zolgensma-improve-lives-of-kids-with-sma-accomplishing-your-goals"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/34692781/75x75/c 75w, https://audioboom.com/i/34692781/150x150/c 150w, https://audioboom.com/i/34692781/300x300/c 300w, https://audioboom.com/i/34692781/600x600/c 600w, https://audioboom.com/i/34692781/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/34692781/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Spinraza and ZOLGENSMA Improve Lives of Kids With SMA &amp; Accomplishing Your Goals
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We discuss how Spinraza and ZOLGENSMA both dramatically improve the lives of kids with SMA. Also, SMA News Today forums moderator DeAnn Runge, shares her perspective on accomplishing your goals while living with SMA.

Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the...
</div>
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5m
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<span><span class="js-time" data-epochtime="1555286400" data-format="short_date">Apr 15, 2019</span></span>
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</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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5m
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