<turbo-stream action="append" target="audio_clips_list"><template>
    <hr class="mvn mhs text-black-50 opacity-25">
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<a class="text-decoration-none" href="/posts/7826125-zolgensma-available-soon-to-eligible-sma-type-1-patients-in-england-scotland"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being added to the list of eligible medications for Spinal Muscular Atrophy (SMA) Type 1 patients in England and Scotland.

Also, despite a global pandemic complicating the process DeAnn Runge received her new wheelchair in record time. She did have to make compromises though and talks about getting used to going from ...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
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<span><span class="js-time" data-epochtime="1616112000" data-format="short_date">Mar 19, 2021</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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9m
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<a class="text-decoration-none" href="/posts/7824375-muscles-controlling-eye-movements-not-affected-by-sma-never-give-up-searching-for-your-advocates"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Muscles Controlling Eye Movements Not Affected by SMA &amp; Never Give Up Searching for Your Advocates
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses how adults with Spinal Muscular Atrophy (SMA) usually don’t experience weakness or impairment of eye muscles.

Forums Director Kevin Schaefer reads a column by Ari Anderson about pursuing a team of advocates.

Link to Ari’s column: https://smanewstoday.com/columns/2021/03/11/knocking-on-doors-searching-for-advocates/

Are you in...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
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&bull;
</span>
<span><span class="js-time" data-epochtime="1615939200" data-format="short_date">Mar 17, 2021</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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8m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7823563-78-discussing-switching-treatments-news-stories-and-recent-columns"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37411378/75x75/c 75w, https://audioboom.com/i/37411378/150x150/c 150w, https://audioboom.com/i/37411378/300x300/c 300w, https://audioboom.com/i/37411378/600x600/c 600w, https://audioboom.com/i/37411378/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #f5f5f5; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37411378/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
78: Discussing Switching Treatments, News Stories, and Recent Columns
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 78, host Kevin Schaefer talks with fellow SMA News Today contributor and Senior Director Michael Morale. They discuss Michael’s decision to switch back to Spinraza, treatment updates, and other news stories. Finally, they highlight some recent columns from our main website.

================================

Links to news stories:

-Cure SMA offering free virtual therapy sessions htt...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
41m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1615852800" data-format="short_date">Mar 16, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
41m
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</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7822657-the-challenges-of-life-as-a-teen-and-young-adult-with-sma-being-denied-access-to-sma-treatment"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
The Challenges Of Life as a Teen And Young Adult With SMA &amp; Being Denied Access to SMA Treatment
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the challenges of life as a teen and young adult with Spinal Muscular Atrophy (SMA).

Also, SMA News Today content creator DeAnn Runge shares the latest column by Brianna Albers. It goes into detail on why she’s being denied treatment and her feelings regarding the process.

Are you interested in learning more about spinal muscu...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
13m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1615766400" data-format="short_date">Mar 15, 2021</span></span>
</div>
</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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13m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7821244-chmp-favors-eu-approval-of-evrysdi-as-1st-oral-at-home-sma-treatment-discussing-gi-issues"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
CHMP Favors EU Approval of Evrysdi as 1st Oral, At-home SMA Treatment &amp; Discussing GI Issues
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the Committee for Medicinal Products for Human Use (CHMP) approval of Evrysdi as the first oral, at-home Spinal Muscular Atrophy (SMA) treatment.

DeAnn Runge talks about her hesitancy to meet with a dietician to discuss GI issues she’s been dealing with.

Are you interested in learning more about spinal muscular atrophy? If so,...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1615507200" data-format="short_date">Mar 12, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7819131-evrysdi-seen-to-improve-survival-motor-development-of-infants-with-sma-type-1"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Evrysdi Seen to Improve Survival, Motor Development of Infants with SMA Type 1
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi improving survival and motor development in infants with Spinal Muscular Atrophy Type 1.

Forums Director Kevin Schaefer talks about managing his mental health and embracing the stillness.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1615334400" data-format="short_date">Mar 10, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7817534-mother-raises-4-adopted-girls-from-china-with-sma-chronic-illnesses"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Mother Raises 4 Adopted Girls From China With SMA, Chronic Illnesses
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a mother who has adopted and is raising four girls from China with Spinal Muscular Atrophy (SMA).

Also, a variety of topics are being talked about on the SMA News Today forums because of the diverse community that not only includes those who have SMA but parents and caregivers as well. Recent conversations include van conversio...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1615161600" data-format="short_date">Mar 08, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7816096-brain-involvement-in-sma-type-1-still-poorly-understood-struggling-to-personalize-new-wheelchair"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Brain Involvement in SMA Type 1 Still Poorly Understood &amp; Struggling to Personalize New Wheelchair
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses why brain involvement in Spinal Muscular Atrophy Type 1 is still poorly understood.

Also, DeAnn Runge talks about how she’s struggling to personalize her new chair. Right now she feels like it’s just another piece of equipment, but would like ideas on how to make it more unique to her.

Are you interested in learning more about...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1614902400" data-format="short_date">Mar 05, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7814350-study-finds-varying-perspectives-from-parents-on-spinraza-therapy-for-children"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the varying perspectives from parents on Spinraza therapy for their children.

Forums Director Kevin Schaefer reads a column by Ari Anderson about what it means to be rare.

Link to Ari’s column: https://smanewstoday.com/columns/2021/02/25/rare-diseases-flying-under-radar/

Are you interested in learning more about spinal muscul...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
15m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1614729600" data-format="short_date">Mar 03, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
15m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7813537-77-interview-with-jeremy-camp-sma-parent-and-advocate"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37743206/75x75/c 75w, https://audioboom.com/i/37743206/150x150/c 150w, https://audioboom.com/i/37743206/300x300/c 300w, https://audioboom.com/i/37743206/600x600/c 600w, https://audioboom.com/i/37743206/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #876a5a; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37743206/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#77: Interview With Jeremy Camp, SMA Parent and Advocate
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 77, host Kevin Schaefer talks with Jeremy Camp from San Diego, California. Jeremy and his wife Amanda have three children, and their youngest son Asher has SMA Type 1. He talks about his family’s SMA journey, his personal life, and his mantra of surrendering to the situation.

================================

Link to Asher’s Facebook page: https://www.facebook.com/asherlennonlionsma...
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36m
</span>
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&bull;
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<span><span class="js-time" data-epochtime="1614643200" data-format="short_date">Mar 02, 2021</span></span>
</div>
</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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36m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7812442-new-smn-boosting-molecule-shows-promise-as-add-on-therapy-rare-disease-day-and-forums-topics"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
New SMN-boosting Molecule Shows Promise as Add-on Therapy &amp; Rare Disease Day And Forums Topics
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a new SMN-boosting molecule which shows promise as an add-on therapy for Spinal Muscular Atrophy (SMA).

Also, Rare Disease Day is a day to recognize lives touched by rare diseases such as SMA. Discussions in the forums have revolved around this subject as have columns and even the latest Dose of DeAnn vlog where she interviews ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1614556800" data-format="short_date">Mar 01, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7810564-rare-case-of-sma-linked-with-myoclonic-epilepsy-detailed-in-report"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Rare Case of SMA Linked With Myoclonic Epilepsy Detailed in Report
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a rare case of Spinal Muscular Atrophy linked with a progressive myoclonic epilepsy.

Balancing mind and body can be tricky. DeAnn Runge shares her struggles with accepting her limitations as it pertains to purchasing products she can use.

Are you interested in learning more about spinal muscular atrophy? If so, please visit ht...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1614297600" data-format="short_date">Feb 26, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7808455-assistive-devices-should-be-standard-in-managing-sma-type-1-i-m-grateful-for-my-friends"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Assistive Devices Should Be Standard in Managing SMA Type 1 &amp; I’m Grateful for My Friends
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses assistive devices which should be standard in managing Spinal Muscular Atrophy (SMA) Type 1.

Forums Director Kevin Schaefer talks about the close friends in his life, and how these relationships connect to his place in the rare disease community.

To learn more about spinal muscular atrophy, visit our website at http://www.sman...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
12m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1614124800" data-format="short_date">Feb 24, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
12m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7806154-quantitative-mri-is-sensitive-measure-of-muscle-decline"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Quantitative MRI Is Sensitive Measure of Muscle Decline
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses quantitative MRI imaging showing itself to be a sensitive measure of decline in young adults with Spinal Muscular Atrophy (SMA).

Now that various treatments are available for SMA, it can be easy to forget that many individuals are starting treatment for the very first time. Alyssa Silva’s latest column details her feelings as o...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1613952000" data-format="short_date">Feb 22, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7804234-spinraza-improves-motor-function-in-case-of-teenager-with-late-onset-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Spinraza Improves Motor Function in Case of Teenager with Late-onset SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in the case of a teenager with late-onset Spinal Muscular Atrophy (SMA).

SMA News Today content creator DeAnn Runge shares a discussion she had regarding accessibility. Despite having come a long way where accessibility is concerned not everyone feels it’s worthwhile.

Are you interested in ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1613692800" data-format="short_date">Feb 19, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7802029-a-miracle-spinraza-gives-boy-a-chance-to-grow-up-life-is-an-adventure-so-let-s-be-pioneers"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
A ‘Miracle’: Spinraza Gives Boy a Chance to Grow Up &amp; Life Is an Adventure, So Let’s Be Pioneers
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a “miracle” when Spinraza gives a boy, now 5 years old, a chance to grow up fast and show good progress.

Also, forums Director Kevin Schaefer reads a column by Ari Anderson about being a pioneer with SMA.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
14m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1613520000" data-format="short_date">Feb 17, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
14m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7801372-76-discussing-treatment-updates-vaccine-access-and-recent-columns"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37678528/75x75/c 75w, https://audioboom.com/i/37678528/150x150/c 150w, https://audioboom.com/i/37678528/300x300/c 300w, https://audioboom.com/i/37678528/600x600/c 600w, https://audioboom.com/i/37678528/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #f5f5f5; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37678528/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#76: Discussing Treatment Updates, Vaccine Access, and Recent Columns
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 76, host Kevin Schaefer talks with fellow SMA News Today contributor DeAnn Runge. They discuss news regarding increasing the dosage of Spinraza in SMA patients, updates on Scholar Rock’s treatment, and an upcoming career webinar series from Cure SMA.

Kevin and DeAnn also discuss mental and emotional health amid the pandemic, as well as access to the COVID-19 vaccine. Finally, they h...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
50m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1613433600" data-format="short_date">Feb 16, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
50m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7800235-embrace-trial-supports-spinraza-s-benefits-in-broad-range-of-sma-patients"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
EMBRACE Trial Supports Spinraza’s Benefits in Broad Range of SMA Patients
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the EMBRACE Trial which supports Spinraza’s benefits in a broad range of Spinal Muscular Atrophy (SMA) patients.

Also, DeAnn Runge welcomes new SMA News Today columnist, Sherry Toh, by reading her debut article, &quot;Welcome to ‘Wandering the Lines,’ Our Journey Into the Unknown&quot;.

Are you interested in learning more about spinal m...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
12m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1613347200" data-format="short_date">Feb 15, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
12m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7798480-nord-s-6th-state-report-card-notes-progress-raises-concerns"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the National Organization for Rare Disorders (NORD) 6th “state report card”, noting progress, but raising concerns.

Plus, closing in on a year after the global pandemic emerged DeAnn Runge shares her thoughts on receiving one of the first vaccines available. She also points out seeing societies inequities during vaccine distrib...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1613088000" data-format="short_date">Feb 12, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7796354-rare-disease-groups-pharmas-join-sma-europe-push-for-newborn-screening"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Rare Disease Groups, Pharmas Join SMA Europe Push for Newborn Screening
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses rare disease groups and pharmaceutical companies, joining SMA Europe in a push for newborn screening for Spinal Muscular Atrophy (SMA).

Forums Director Kevin Schaefer shares his thoughts on “Disability Visibility,” a collection of first-person essays from a wide range of disabled authors.

Are you interested in learning more ab...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1612915200" data-format="short_date">Feb 10, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7794144-motor-function-breathing-important-in-choosing-treatment"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Motor Function, Breathing Important in Choosing Treatment
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses improvement in motor function, breathing, and ease of administration are important factors when Spinal Muscular Atrophy (SMA) patients and caregivers decide on treatment options.

Plus, recent conversations in the SMA News Today forums include the efficacy of the new vaccines in combination with some SMA treatments. Also what to...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1612742400" data-format="short_date">Feb 08, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7792318-more-severe-covid-19-symptoms-seen-in-children-with-sma-type-1"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
More Severe COVID-19 Symptoms Seen in Children with SMA Type 1
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses more severe COVID-19 symptoms being seen in children with Spinal Muscular Atrophy (SMA) Type 1.

Also, vlogger and forums moderator DeAnn Runge talks about her upcoming Dose of DeAnn vlog where she ventures out of what she refers to as hibernation. She shares where she went and why she decided to go as well as encourages viewers...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1612483200" data-format="short_date">Feb 05, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7789915-better-ways-of-capturing-progression-in-types-2-and-3-identified-in-study"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Better Ways of Capturing Progression in Types 2 and 3 Identified in Study
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses better ways of capturing progression of motor abilities in Spinal Muscular Atrophy (SMA) Types 2 and 3.

Forums Director Kevin Schaefer talks about the struggles of being a disabled extrovert during a pandemic.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1612310400" data-format="short_date">Feb 03, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7788712-75-alvaro-cheherlian-founder-and-ceo-of-wrekt-svpply"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37610189/75x75/c 75w, https://audioboom.com/i/37610189/150x150/c 150w, https://audioboom.com/i/37610189/300x300/c 300w, https://audioboom.com/i/37610189/600x600/c 600w, https://audioboom.com/i/37610189/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #f5f5f5; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37610189/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#75: Alvaro Cheherlian, Founder and CEO of Wrekt Svpply
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 75, host Kevin Schaefer talks with Alvaro Cheherlian from Sylmar, California. Alvaro is the founder and CEO of Wrekt Svpply, a clothing brand company. He talks about building his business, growing up with SMA Type 2, and his love for coffee and heavy metal. Also, Kevin and Alvaro take some time to geek out on movies and Marvel television.

================================

Link to Al...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
39m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1612224000" data-format="short_date">Feb 02, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
39m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7787518-cure-sma-booklet-outlines-possible-risks-benefits-of-combining-treatments"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Cure SMA Booklet Outlines Possible Risks, Benefits of Combining Treatments
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Cure SMA booklet which outlines the possible risks and benefits of combining treatments for Spinal Muscular Atrophy (SMA).

Also, several topics are being hashed over on the forums. Among them include breaking in a new wheelchair, frustrations with bureaucratic red tape, reflecting on being homebound for the last year, finding...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1612137600" data-format="short_date">Feb 01, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7785345-topaz-trial-results-on-muscle-therapy-likely-by-june-scholar-rock-says"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
TOPAZ Trial Results on Muscle Therapy Likely by June, Scholar Rock Says
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the TOPAZ trial results expected in June on a muscle-directed therapy for Spinal Muscular Atrophy (SMA).

Plus, staying social during a pandemic isn’t easy. Cure SMA has found a way for the SMA community to connect during these difficult times. DeAnn Runge shares her experience with one of the adult online socials hosted by Cure...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1611878400" data-format="short_date">Jan 29, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7783288-resolutions-mindsets-and-emotions-transitioning-sma-patients-from-older-to-newer-wheelchairs"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Resolutions, Mindsets and Emotions &amp; Transitioning SMA Patients From Older To Newer Wheelchairs
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Halsey Blocher, From Where I Sit, “Advice From a Life Coach: Resolutions, Mindsets, and Emotions”.

Forums Director Kevin Schaefer reads from an article on our HCP site about transitioning to a new wheelchair.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1611705600" data-format="short_date">Jan 27, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7781123-online-for-2021-team-cure-sma-race-series-planning-variety-of-events"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Online for 2021, Team Cure SMA Race Series Planning Variety of Events
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the Team Cure SMA endurance race series moving online in the current pandemic, and expecting more people to join.

Also, Vlogger and Forums Moderator, DeAnn Runge shares an overview of recent SMA News Today columns. She finds each of them relatable to her life living with SMA.

Are you interested in learning more about spinal mu...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1611532800" data-format="short_date">Jan 25, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7779305-zolgensma-approved-to-treat-young-sma-patients-in-canada"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Approved to Treat Young SMA Patients in Canada
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Spinraza Phase 4 trial to treat children who failed to respond to gene therapy.

DeAnn Runge shares her experience obtaining her first dose of the Pfizer COVID vaccine.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1611273600" data-format="short_date">Jan 22, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7777207-keeping-your-child-with-sma-in-school-during-the-cold-and-flu-season-soaring-with-hope"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Keeping Your Child with SMA in School During the Cold and Flu Season &amp; Soaring With Hope
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses strategies to keep your child with Spinal Muscular Atrophy (SMA) in school during the cold and flu season.

Forums Director Kevin Schaefer reads the introductory column from our newest writer, Ari Anderson.

To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1611100800" data-format="short_date">Jan 20, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7776088-74-interview-with-katie-napiwocki-and-andy-rusch-interabled-couple"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37542737/75x75/c 75w, https://audioboom.com/i/37542737/150x150/c 150w, https://audioboom.com/i/37542737/300x300/c 300w, https://audioboom.com/i/37542737/600x600/c 600w, https://audioboom.com/i/37542737/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #835f50; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37542737/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#74: Interview with Katie Napiwocki and Andy Rusch, Interabled Couple
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 74, host Kevin Schaefer talks with Katie Napiwocki and Andy Rusch from Mosinee, Wisconsin. Katie is a columnist for SMA News Today, and her partner Andy is also her primary caregiver. Listen to the story of how they met at MDA camp and learned about the nuances of being in an interabled relationship.

================================

Link to Katie’s column: https://smanewstoday.com/...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
32m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1611014400" data-format="short_date">Jan 19, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
32m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7774926-new-cure-sma-webinar-series-to-focus-on-health-wellness-let-s-talk-about-sex-and-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
New Cure SMA Webinar Series to Focus on Health, Wellness &amp; Let&#39;s Talk About Sex and SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the Cure SMA three-part webinar series on wellness topics for the Spinal Muscular Atrophy community.

Typically a taboo topic, sex and SMA isn’t discussed often. Forum members and columnists have stepped up to the plate to open the discussion on dating and relationships, helping break the stigma that those with disabilities aren...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1610928000" data-format="short_date">Jan 18, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7773119-higher-dose-spinraza-trial-now-enrolling-part-b-after-no-safety-issues-found"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Higher-dose Spinraza Trial Now Enrolling Part B After No Safety Issues Found
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a higher dose Spinraza trial now enrolling Part B after no safety issues were found.

Also, DeAnn Runge shares her personal experience after switching from Spinraza to Evrysdi.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1610668800" data-format="short_date">Jan 15, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7770864-this-year-i-want-to-be-brave-the-challenges-that-come-with-pursuing-independence"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
This Year, I Want to Be Brave &amp; The Challenges That Come With Pursuing Independence
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, The Wolf Finally Frees Itself, “This Year, I Want to Be Brave”.

Forums Director Kevin Schaefer talks about the challenges that come with pursuing independence and his goals for the future.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1610496000" data-format="short_date">Jan 13, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7769152-informal-sma-caregivers-surveyed-in-europe-report-high-daily-burden-relevant-topics-on-the-forums"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Informal SMA Caregivers Surveyed in Europe Report High Daily Burden &amp; Relevant Topics On The Forums
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses how non-professional caregivers who care for children with Spinal Muscular Atrophy (SMA) carry a high daily burden that negatively affects their lives.

As the moderators return from holiday break the most relevant topics are being discussed on the forums. Recovering from spinal fusion surgery, going to a chiropractor, setting g...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1610323200" data-format="short_date">Jan 11, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7767454-zolgensma-linked-in-3-cases-to-serious-but-treatable-blood-disorder"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Linked in 3 Cases to Serious But Treatable Blood Disorder
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma is linked in three cases to a serious but treatable blood disorder.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
10m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1610064000" data-format="short_date">Jan 08, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
10m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7765601-zolgensma-approved-to-treat-young-sma-patients-in-canada-kidney-stone-and-a-trip-to-the-er"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma Approved to Treat Young SMA Patients in Canada &amp; Kidney Stone And a Trip To The ER
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma approval in Canada for the treatment of young Spinal Muscular Atrophy patients.

Also, Forums Director Kevin Schaefer tells the story of a kidney stone and a trip to the ER during the holidays.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1609891200" data-format="short_date">Jan 06, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7764800-73-interview-with-tyler-dykema-artist-and-musician-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37482322/75x75/c 75w, https://audioboom.com/i/37482322/150x150/c 150w, https://audioboom.com/i/37482322/300x300/c 300w, https://audioboom.com/i/37482322/600x600/c 600w, https://audioboom.com/i/37482322/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #f5f5f5; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37482322/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#73: Interview With Tyler Dykema, Artist and Musician with SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 73, host Kevin Schaefer talks with Tyler Dykema from Grand Rapids, Michigan. Tyler is an artist, musician, and punk rock connoisseur who has SMA Type II. He talks in this episode about growing up with SMA, his artistic passions, concert accessibility, and more. Happy New Year!

================================

To learn more about Evrysdi, please visit www.ApprovedForSMA.com

=======...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
38m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1609804800" data-format="short_date">Jan 05, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
38m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7763898-paramedian-injection-approach-found-to-ease-spinraza-administration-difficult-on-getting-evrysdi"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Paramedian Injection Approach Found to Ease Spinraza Administration &amp; Difficult On Getting Evrysdi
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses administering Spinraza (nusinersen) via a paramedian injection to shorten procedure times and reduce adverse events.

SMA News Today’s forums moderator, DeAnn Runge, discusses one of the most difficult aspects of living with a disability, which is navigating the healthcare system. Brianna Albers latest column, I Can’t Get Evrysd...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1609718400" data-format="short_date">Jan 04, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7762882-ella-has-fun-while-sheltering-at-home-stepping-into-a-new-me-in-the-year-ahead"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Ella Has Fun While Sheltering at Home &amp; Stepping Into a New Me in the Year Ahead
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Michael Casten, “Five Servings of Strength”, Ella Has Fun While Sheltering at Home.

SMA News Today’s forums moderator, DeAnn Runge, reads Alyssa Silva’s recent column, Stepping Into a New Me in the Year Ahead, where she does just that.

================================

To learn more about Evrysdi, please visit www.Ap...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1609459200" data-format="short_date">Jan 01, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7761426-being-an-uncle-with-sma-and-how-this-role-can-change-one-s-life"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Being An Uncle With SMA and How This Role Can Change One&#39;s Life
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Michael Casten, “Five Servings of Strength”, Ella Has Made Big Gains Since Diagnosis Day.

SMA News Today’s Columnist and Forums Director, Kevin Schaefer, Kevin Schaefer reflects on being an uncle with SMA and how this role has changed his life.

================================

To learn more about Evrysdi, please vis...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1609286400" data-format="short_date">Dec 30, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7760037-smart-tech-is-integral-to-my-quality-of-life-2020-highlights"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Smart Tech Is Integral to My Quality of Life &amp; 2020 Highlights
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, “The Wolf Finally Frees Itself”, Yes, Actually, Smart Tech Is Integral to My Quality of Life.

SMA News Today’s forums moderator, DeAnn Runge, looks back at 2020, and shares some memorable highlights despite a pandemic throwing a wrench into everything. She encourages everyone to go after their goals an...
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<span><span class="js-time" data-epochtime="1609113600" data-format="short_date">Dec 28, 2020</span></span>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7758923-rising-from-the-ashes-and-flying-with-broken-wings-finding-my-voice-in-the-disability-community"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Rising From the Ashes and Flying With Broken Wings &amp; Finding My Voice In the Disability Community
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, reads a column by Hasley Blocher, “From Where I Sit”, Rising From the Ashes an Flying With Broken Wings.

SMA News Today’s forums moderator, DeAnn Runge shares excerpts from Katie Napiwocki&#39;s recent column, Finding My Voice within the Disability Community, where she explores the concept of disability and how it relates to her life.

=====...
</div>
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<span><span class="js-time" data-epochtime="1608854400" data-format="short_date">Dec 25, 2020</span></span>
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</a></div>
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<a class="text-decoration-none" href="/posts/7757115-financial-burden-of-sma-much-higher-than-other-conditions-the-mental-benefits-of-physical-therapy"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Financial Burden of SMA Much Higher Than Other Conditions &amp; The Mental Benefits of Physical Therapy
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the higher financial burden on Spinal Muscular Atrophy (SMA) patients, compared to other conditions.

SMA News Today’s Columnist and Forums Director, Kevin Schaefer, reads from an article on our HCP site about the mental and emotional benefits of physical therapy.

================================

To learn more about Evrysdi, p...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
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<span><span class="js-time" data-epochtime="1608681600" data-format="short_date">Dec 23, 2020</span></span>
</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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12m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7755526-measuring-neurological-impact-of-polio-proves-useful-in-sma-study-reports"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses how measuring the neurological impact of Polio proves useful in studying patients with Spinal Muscular Atrophy (SMA).

SMA News Today’s forums moderator, DeAnn Runge, talks about an article that discusses the Paramedian approach for Spinraza injections. The option of Everysdi is also a hot topic. Since gatherings are out this ho...
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<span><span class="js-time" data-epochtime="1608508800" data-format="short_date">Dec 21, 2020</span></span>
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11m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7754077-genetic-analysis-of-families-finds-novel-mutations-in-sma-the-lack-of-privacy-when-living-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Genetic Analysis of Families Finds Novel Mutations in SMA &amp; The Lack Of Privacy When Living With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a genetic analysis of families with a member affected by Spinal Muscular Atrophy (SMA) which finds novel mutations in SMA patients.

SMA News Today’s forums moderator, DeAnn Runge shares her experiences with the lack of privacy that can be an issue when you have SMA.

================================

To learn more about Evrysdi...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
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10m
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<span><span class="js-time" data-epochtime="1608249600" data-format="short_date">Dec 18, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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10m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
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<a class="text-decoration-none" href="/posts/7752400-zolgensma-associated-liver-abnormalities-common-but-manageable-i-m-disappointed-and-that-s-ok"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Zolgensma-associated Liver Abnormalities Common but Manageable &amp; I’m Disappointed, and That’s OK
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which finds Zolgensma-associated liver abnormalities are common but manageable in children with Spinal Muscular Atrophy (SMA).

SMA News Today’s Columnist and Forums Director, Kevin Schaefer, reads from Brianna Albers’ column about facing disappointment during the holiday season.

================================

To lea...
</div>
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<span><span class="js-time" data-epochtime="1608076800" data-format="short_date">Dec 16, 2020</span></span>
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<a class="text-decoration-none" href="/posts/7751608-72-evrysdi-physical-and-mental-health-and-highlights-of-2020"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37411378/75x75/c 75w, https://audioboom.com/i/37411378/150x150/c 150w, https://audioboom.com/i/37411378/300x300/c 300w, https://audioboom.com/i/37411378/600x600/c 600w, https://audioboom.com/i/37411378/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #f5f5f5; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37411378/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#72: Evrysdi, Physical and Mental Health, and Highlights of 2020
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 72, Kevin Schaefer and Michael Morale reflect on the craziness of 2020, and they highlight some of the key pieces of content SMA News Today created this year. They also discuss Michael’s ongoing Evrysdi treatments, and share tips for improving one’s mental and physical health.

================================

Link to DeAnn’s videos: https://www.youtube.com/playlist?list=PLtRCVbeiSo...
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<span><span class="js-time" data-epochtime="1607990400" data-format="short_date">Dec 15, 2020</span></span>
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48m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7750425-neurological-alliance-report-calls-for-better-treatment-care-for-uk-patients"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Neurological Alliance Report Calls for Better Treatment, Care for UK Patients
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Neurological Alliance report calling for better treatment and care of U.K. patients living with rare neurological conditions such as Spinal Muscular Atrophy (SMA).

SMA News Today’s forums moderator, DeAnn Runge discusses an article written by Alyssa Silva. She talks about how Alyssa had doubts about her ability to start a sma...
</div>
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<span><span class="js-time" data-epochtime="1607904000" data-format="short_date">Dec 14, 2020</span></span>
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8m
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<a class="text-decoration-none" href="/posts/7749025-spinraza-linked-to-temporary-abnormalities-in-immune-cells-in-2-sma-infants"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/37397411/75x75/c 75w, https://audioboom.com/i/37397411/150x150/c 150w, https://audioboom.com/i/37397411/300x300/c 300w, https://audioboom.com/i/37397411/600x600/c 600w, https://audioboom.com/i/37397411/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #0a9ffe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/37397411/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza is linked to temporary abornalities in immune cells in two Spinal Muscular Atrophy (SMA) infants.

SMA News Today’s forums moderator, DeAnn Runge talks about how the process is going adjusting to her new wheelchair.

================================

To learn more about Evrysdi, please visit www.ApprovedForSMA.com

...
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<span><span class="js-time" data-epochtime="1607644800" data-format="short_date">Dec 11, 2020</span></span>
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