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<a class="text-decoration-none" href="/posts/7586973-fatigue-experienced-prior-spinraza-injection-cure-sma-covid-19-care-package"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Fatigue Experienced Prior Spinraza Injection &amp; Cure SMA COVID-19 Care Package
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<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about the fatigue he experiences prior to a Spinraza injection.
DeAnn’s latest vlog has been posted where she shows what’s included in the Cure SMA COVID-19 care package. Both Katie Napiwocki and Alyssa Silva have columns being discussed in the forums and the latest roundtable talking about Spinraza during the coronavirus is available for listening.
Are you ...
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6m
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<span><span class="js-time" data-epochtime="1589971470" data-format="short_date">May 20, 2020</span></span>
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6m
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<a class="text-decoration-none" href="/posts/7585948-58-how-covid-19-affects-spinraza-and-other-medical-appointments"><div class="Episode-list-grid card-body pan">
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<img srcset="https://audioboom.com/i/36397997/75x75/c 75w, https://audioboom.com/i/36397997/150x150/c 150w, https://audioboom.com/i/36397997/300x300/c 300w, https://audioboom.com/i/36397997/600x600/c 600w, https://audioboom.com/i/36397997/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #d4c4b3; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36397997/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#58 - How COVID-19 Affects Spinraza and Other Medical Appointments
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<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 58, the SMA News Today team talks about how the COVID-19 pandemic is impacting their Spinraza appointments and other medical procedures. Hosts Kevin Schaefer and Michael Morale, and forum moderators DeAnn Runge and Alyssa Silva, each share their personal experiences regarding this subject. They also discuss how telemedicine could potentially become the new normal for rare disease pat...
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30m
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<span><span class="js-time" data-epochtime="1589846400" data-format="short_date">May 19, 2020</span></span>
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30m
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<a class="text-decoration-none" href="/posts/7584836-how-lung-ultrasound-is-a-reliable-option-to-chest-x-rays-for-monitoring-children"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Lung Ultrasound is a Reliable Option to Chest X-rays for Monitoring Children
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums moderator DeAnn Runge shares how she’s navigating the current world situation and how resuming operations in the next phase poses new challenges and concerns.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how lung ultrasound is a reliable option to chest X-rays for monitoring children.
Are you interested in learning more about spinal muscular atrophy? If so, please v...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
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<span><span class="js-time" data-epochtime="1589760000" data-format="short_date">May 18, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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9m
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<a class="text-decoration-none" href="/posts/7582958-study-suggests-the-interplay-of-motor-neurons-and-glial-cells-is-at-the-root-of-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Study Suggests The Interplay of Motor Neurons and Glial Cells is At The Root of SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer reads from Brianna Albers’ latest column “How Do We Maintain Post-traumatic Growth?”
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study suggests the interplay of motor neurons and Glial cells is at the root of Spinal Muscular Atrophy.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewst...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
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8m
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<span><span class="js-time" data-epochtime="1589500800" data-format="short_date">May 15, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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8m
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</a></div>
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<a class="text-decoration-none" href="/posts/7580935-differences-between-risdiplam-and-srk-015-dealing-with-anxiety-taking-things-for-granted"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Differences Between Risdiplam and SRK-015, Dealing With Anxiety &amp; Taking Things For Granted
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In the forums Michael Morale’s latest video, which points out the differences between risdiplam and SRK-015 as potential SMA treatments, has been a topic of conversation.
Brianna Albers&#39; series on dealing with anxiety that comes along with the coronavirus has been a popular topic as well as discussions about what “able-bodied” people take for granted, liquid albuterol and disabled authors.
Foru...
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6m
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<span><span class="js-time" data-epochtime="1589328000" data-format="short_date">May 13, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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6m
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</a></div>
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<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7578968-how-risdiplam-defies-sma-natural-history-in-type-1-infants-according-to-firefish-study-data"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data by SMA News Today
</div>
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12m
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<span><span class="js-time" data-epochtime="1589198136" data-format="short_date">May 11, 2020</span></span>
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</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
12m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7577331-how-growth-friendly-spinal-implants-may-help-sma-children-before-fusion-surgery"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Growth-Friendly Spinal Implants May Help SMA Children Before Fusion Surgery
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about an anthology of essays from the New York Times series on disability.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how growth-friendly spinal implants may help SMA children before fusion surgery.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
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7m
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<span><span class="js-time" data-epochtime="1588896000" data-format="short_date">May 08, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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7m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7575504-how-sma-related-humor-presents-itself-in-unexpected-moments-fundraising-options-online-therapy"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How SMA-Related Humor Presents Itself in Unexpected Moments, Fundraising Options &amp; Online Therapy
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about how SMA-related humor presents itself in unexpected moments. And also, this week the topics included on the forums range from discussing fundraising options in the current environment, using online therapy platforms such as Talkspace and even a book discussion.
To learn more about spinal muscular atrophy, visit www.smanewstoday.com.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
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6m
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<span><span class="js-time" data-epochtime="1588723200" data-format="short_date">May 06, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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6m
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</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7574426-57-interview-with-heather-kerstetter"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36464277/75x75/c 75w, https://audioboom.com/i/36464277/150x150/c 150w, https://audioboom.com/i/36464277/300x300/c 300w, https://audioboom.com/i/36464277/600x600/c 600w, https://audioboom.com/i/36464277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #cb9172; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36464277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#57 - Interview with Heather Kerstetter
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 57, host Kevin Schaefer interviews Heather Kerstetter from Philadelphia, Pennsylvania. Heather is a social worker who has SMA Type 3. She talks about growing up with SMA, relationships, and her advocacy work for people with disabilities.
To learn more about spinal muscular atrophy, visit www.smanewstoday.com.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
27m
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&bull;
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<span><span class="js-time" data-epochtime="1588636800" data-format="short_date">May 05, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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27m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7573440-how-taking-part-in-adapted-sports-improves-mental-health-in-patients-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Taking Part in Adapted Sports Improves Mental Health in Patients With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums moderator DeAnn Runge discusses how looking at what makes her life easier now determines what would make her life easier moving forward.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how taking part in adapted sports improves mental health in patients with Spinal Muscular Atrophy and other neuromuscular disorders.
Are you interested in learning more about spinal musc...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
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<span><span class="js-time" data-epochtime="1588550400" data-format="short_date">May 04, 2020</span></span>
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8m
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</a></div>
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<a class="text-decoration-none" href="/posts/7571547-discussing-the-lack-of-muscle-cell-signaling-which-is-seen-to-kill-motor-neurons-in-sma-led2"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Discussing The Lack of Muscle Cell Signaling Which is Seen to Kill Motor Neurons in SMA-LED2
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses the lack of muscle cell signaling which is seen to kill motor neurons in SMA-LED2.
SMA News Today’s Senior Director of Multichannel Content, Michael Morale, talks about how he’s had to trust others to help him during the COVID-19 pandemic.
Are you interested in learning more about spinal muscular atrophy? If so, please visit htt...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1588329914" data-format="short_date">May 01, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7569513-telemedicine-therapy-platforms-alternative-exercise-routines-hospital-preparedness-folders"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Telemedicine, Therapy Platforms, Alternative Exercise Routines &amp; Hospital Preparedness Folders
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer reads from his latest column about a new at-home exercise routine he’s developed, using his electric ceiling lift.
Also, on our forums over the last week we’ve covered many topics including telemedicine, therapy platforms, alternative exercise routines along with advance directives and hospital preparedness folders.
Are you interested in learning more about spinal...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1588118400" data-format="short_date">Apr 29, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7566915-discussing-motor-gains-and-safety-with-zolgensma-s-it-use-in-a-strong-trial"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Discussing Motor Gains and Safety with Zolgensma’s IT Use in a STRONG Trial
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
While thinking about how to navigate the Coronavirus situation, forums moderator DeAnn Runge draws parallels to a family game they played. SMA News Today’s multimedia associate, Price Wooldridge, discusses motor gains and safety with Zolgensma’s IT use in a STRONG trial.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1587945600" data-format="short_date">Apr 27, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7565090-first-patient-treated-in-the-phase-2-3-trial-assessing-higher-doses-of-spinraza"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
First Patient Treated in The Phase 2/3 Trial, Assessing Higher Doses of Spinraza
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer writes about a new at-home exercise routine he’s developed, using his electric ceiling lift.
SMA News Today’s multimedia associate, Price Wooldridge, discusses the first patient treated in the Phase 2/3 trial, assessing higher doses of Spinraza.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1587686400" data-format="short_date">Apr 24, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7563179-playing-phone-games-and-nintendo-switch-home-exercise-routines-and-robotic-assistance-devices"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Playing Phone Games and Nintendo Switch &amp; Home Exercise Routines and Robotic Assistance Devices
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about how the pop-culture icon Kevin Smith impacted his life, both as a writer and as a person with a disability.
Also, there have been some recent discussions on the forums about keeping busy by playing phone games and using a Nintendo Switch. Creating at home exercise routines and using robotic assistance devices have also been topics of conversation.
Are ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1587513600" data-format="short_date">Apr 22, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7562173-56-sma-treatments-overview-and-crip-camp-discussion"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36397997/75x75/c 75w, https://audioboom.com/i/36397997/150x150/c 150w, https://audioboom.com/i/36397997/300x300/c 300w, https://audioboom.com/i/36397997/600x600/c 600w, https://audioboom.com/i/36397997/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #d4c4b3; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36397997/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#56 - SMA Treatments Overview and “Crip Camp” Discussion
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 56, hosts Kevin Schaefer and Michael Morale provide an overview of the different SMA treatments, and discuss recent news about the experimental therapy risdiplam.
Then in part two, special guest Ralph Yaniz joins Kevin and Michael to discuss the new Netflix documentary “Crip Camp.” Ralph is a columnist for Muscular Dystrophy News Today, and a disability rights activist. Listen to the...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
50m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1587427200" data-format="short_date">Apr 21, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
50m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7561323-how-adult-patients-with-sma-benefit-from-spinraza-treatments"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Adult Patients with SMA Benefit From Spinraza Treatments
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
To increase her independence, forums moderator DeAnn Runge is debating if she should pursue a service dog, a JACO Robotic Arm or both. Each option presents with pros and cons.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how adult patients with Spinal Muscular Atrophy benefit from Spinraza treatments.
Are you interested in learning more about spinal muscular atrophy? If so...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1587340800" data-format="short_date">Apr 20, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7559558-ideas-for-staying-fit-and-healthy-during-isolation-approval-of-zolgensma-for-treating-sma-in-japan"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Ideas for Staying Fit and Healthy During Isolation &amp; Approval of Zolgensma for Treating SMA in Japan
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about ideas for staying fit and healthy during COVID-19 isolation.
SMA News Today’s multimedia associate, Price Wooldridge, discusses the approval of Zolgensma for treatment of Spinal Muscular Atrophy in Japan.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1587081600" data-format="short_date">Apr 17, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7557502-accessible-toys-having-fun-with-subscription-boxes-kevin-schaefer-s-obsession-with-action-figures"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Accessible Toys, Having Fun With Subscription Boxes &amp; Kevin Schaefer&#39;s Obsession With Action Figures
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
The Easter holiday looked a lot different this year than it traditionally does. Forum members shared their plans for the holiday to make it special. Accessible toys was another topic of conversation. Also don’t forget to check out DeAnn’s latest vlog on having fun with subscription boxes.
Forums Director Kevin Schaefer talks about how his lifelong obsession with action figures contributes to hi...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1586908800" data-format="short_date">Apr 15, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7555253-odd-jobs-spring-cleaning-french-study-finds-improvements-in-palliative-care-for-sma-type-1-babies"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Odd Jobs, Spring Cleaning &amp; French Study Finds Improvements in Palliative Care for SMA Type 1 Babies
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums moderator DeAnn Runge is looking for solutions to help with odd jobs and spring cleaning.
SMA News Today’s multimedia associate, Price Wooldridge, discusses a French study which finds palliative care for SMA Type 1 babies has improved.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1586736000" data-format="short_date">Apr 13, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7553428-fda-shifts-risdiplam-decision-to-august-to-include-data-on-older-patients"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
FDA Shifts Risdiplam Decision to August to Include Data on Older Patients
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about the Stephen Hawking biopic “The Theory of Everything,” and how this film explores disability.
SMA News Today’s multimedia associate, Price Wooldridge, discusses the FDA shifting it’s Risdiplam decision to August to include data on older patients.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
9m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1586521720" data-format="short_date">Apr 10, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
9m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7551373-managing-spinraza-treatments-caregivers-outside-deliveries-and-more-during-covid-19"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Managing Spinraza Treatments, Caregivers, Outside Deliveries and More During COVID-19
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
COVID-19 is still a popular topic of discussion on the forums. Topics associated include continuing with Spinraza treatments, scheduling caregivers, how to handle outside deliveries and more.
Also, forums Director Kevin Schaefer reviews the new Netflix documentary “Crip Camp,” which tells the story of the early disability rights movement.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1586304000" data-format="short_date">Apr 08, 2020</span></span>
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</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7550017-55-interview-with-victor-guerra"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36331335/75x75/c 75w, https://audioboom.com/i/36331335/150x150/c 150w, https://audioboom.com/i/36331335/300x300/c 300w, https://audioboom.com/i/36331335/600x600/c 600w, https://audioboom.com/i/36331335/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #c88d69; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36331335/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#55 - Interview With Victor Guerra
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 55, host Kevin Schaefer interviews Victor Guerra from Fresno, California. Victor is an entrepreneur who has SMA Type 2, and he uses his online store to promote messages of positivity and motivation. During this discussion, he talks about growing up with SMA, building his business, and dealing with medical setbacks throughout his life.
Victor’s website: www.victortheinspiration.com
Vi...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
52m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1586217600" data-format="short_date">Apr 07, 2020</span></span>
</div>
</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
52m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7549134-how-scoliosis-surgery-in-sma-children-is-linked-to-permanent-motor-skill-loss"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Scoliosis Surgery in SMA Children is Linked to Permanent Motor Skill Loss
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Amid the coronavirus crisis forums moderator DeAnn Runge has to decide if she wants to risk exposure to the virus to continue her Spinraza treatments.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how scoliosis surgery in SMA children is linked to permanent motor skill loss.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smane...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1586131200" data-format="short_date">Apr 06, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7547253-discussing-markers-of-inflammation-essential-for-aav-gene-therapy-use-thoughts-about-crip-camp"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Discussing Markers of Inflammation Essential for AAV Gene Therapy Use &amp; Thoughts About “Crip Camp&quot;
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about the new Netflix documentary “Crip Camp,” which tells the story of a summer camp in the 50s and 60s for teens with disabilities.
SMA News Today’s multimedia associate, Price Wooldridge, discusses markers of inflammation essential for AAV gene therapy use.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://sman...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1585910963" data-format="short_date">Apr 03, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7545476-the-sma-news-today-forums-a-place-to-share-ideas-that-will-brighten-spirits-during-difficult-times"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
The SMA News Today Forums: a Place to Share Ideas That Will Brighten Spirits During Difficult Times
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
With a community full of problem solvers the forums have become a place to share ideas that will brighten spirits during these difficult times.
Also, forums Director Kevin Schaefer reflects on past times of self-isolation, and how the one he’s experiencing now compares.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1585699200" data-format="short_date">Apr 01, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7543455-global-rare-disease-group-s-goal-to-have-1-000-new-therapies-by-2027-benefits-of-a-service-dog"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Global Rare Disease Group’s Goal to Have 1,000 New Therapies by 2027 &amp; Benefits of a Service Dog
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums moderator DeAnn Runge talks about how having a service dog has enhanced her life.
SMA News Today’s multimedia associate, Price Wooldridge, discusses a global rare disease group’s goal to have 1,000 new therapies by 2027, despite the current COVID-19 pandemic.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1585526400" data-format="short_date">Mar 30, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7541809-book-movie-and-spotify-recommendations-study-recommends-a-lower-radiation-dose-for-spinraza-scans"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Book, Movie and Spotify Recommendations &amp; Study Recommends a Lower Radiation Dose for Spinraza Scans
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer shares some book, movie, and Spotify recommendations for people who are on quarantine.
SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which recommends a lower radiation dose for Spinraza scans.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1585267200" data-format="short_date">Mar 27, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7539561-alternative-solutions-to-physical-therapy-during-the-covid-19-pandemic"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Alternative Solutions to Physical Therapy During the COVID-19 Pandemic
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about alternative solutions to physical therapy. As a result of the COVID-19 pandemic, he has to refrain from going to his appointments for now.
Also, believe it or not, despite being high on the list, the coronavirus isn’t the only topic of conversation on the forums. DeAnn is in need of a recommendation for a cell phone and Alyssa is wondering what made yo...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1585094400" data-format="short_date">Mar 25, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7537749-new-test-screens-420-genes-for-markers-of-sma-a-message-to-friends-family-about-covid-19"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
New Test Screens 420 Genes for Markers of SMA &amp; A Message to Friends, Family About COVID-19
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums moderator DeAnn Runge shares her message to friends and family in regards to COVID-19 and their lives being turned upside down.
SMA News Today’s multimedia associate, Price Wooldridge, discusses a new test which screens 420 genes for markers of Spinal Muscular Atrophy and other diseases.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanew...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1584921600" data-format="short_date">Mar 23, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7536141-tips-for-self-isolation-during-the-coronavirus-syt13-gene-can-prolong-life-in-mice-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Tips For Self-Isolation During the Coronavirus &amp; SYT13 Gene Can Prolong Life in Mice With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer shares some of his tips for self-isolation during the Coronavirus (COVID-19) outbreak.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the synaptotagmin 13 (SYT13) gene can prolong life in mice with ALS and SMA.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1584662400" data-format="short_date">Mar 20, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7534163-coronavirus-covid-19-precautions-protecting-yourself-and-staying-productive-during-lockdown"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
One of the main topics of conversation over on the forums is COVID-19. Posted are links to resources and tips on staying productive during lockdown. DeAnn also discusses where to find the latest SMA News Today columns.
Also, forums Director Kevin Schaefer shares his thoughts on staying cautious during the Coronavirus pandemic, and how he’s protecting himself.
Are you interested in learning more...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1584489600" data-format="short_date">Mar 18, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7533164-54-roundtable-about-corona-virus"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36241252/75x75/c 75w, https://audioboom.com/i/36241252/150x150/c 150w, https://audioboom.com/i/36241252/300x300/c 300w, https://audioboom.com/i/36241252/600x600/c 600w, https://audioboom.com/i/36241252/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #d4c3b3; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36241252/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#54 - Roundtable About Corona Virus
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 54, Michael and I discuss the global outbreak of Coronavirus (COVID-19). We share our tips for how others in the SMA community can best protect themselves, as well as their caregivers. Please note that this is not professional medical advice. We’re just sharing our thoughts and opinions.
How are you all doing? Any tips for self-isolation?
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
19m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1584403200" data-format="short_date">Mar 17, 2020</span></span>
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</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
19m
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</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7532152-risdiplam-under-fda-review-how-the-lack-of-sma-protein-may-also-directly-contribute-to-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Risdiplam Under FDA Review &amp; How the Lack of SMA Protein May Also Directly Contribute to SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Anticipation is growing as Roche/Genentech&#39;s treatment risdiplam, the first oral medication to treat SMA, is under FDA review.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the lack of SMA protein may also directly contribute to SMA.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1584316800" data-format="short_date">Mar 16, 2020</span></span>
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</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7530121-importance-of-physical-therapy-institute-for-gene-therapies-to-modernize-reimbursement-framework"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Importance of Physical Therapy &amp; Institute for Gene Therapies to Modernize Reimbursement Framework
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s Senior Director of Multichannel Content, Michael Morale, discusses the importance of physical therapy, and how physical therapy can not only help avoid problems, but also correct some problems that have already occurred.
Also, SMA News Today’s multimedia associate, Price Wooldridge, discusses how the Institute for Gene Therapies seeks to modernize the regulatory reimbursement f...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1584057600" data-format="short_date">Mar 13, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7527981-covid19-spinraza-bloating-spc-s-being-spontaneous-transferring-out-of-wheelchair-to-take-a-nap"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
COVID19, Spinraza, Bloating, SPC’s, Being Spontaneous &amp; Transferring Out Of Wheelchair To Take a Nap
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In the forums a topic of discussion has been the thing that’s on everyone’s mind, the Novel Coronavirus, also known as COVID19. Spinraza has also been discussed. Other topics include bloating, SPC’s and being spontaneous.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
5m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1583884800" data-format="short_date">Mar 11, 2020</span></span>
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</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
5m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7525700-being-spontaneous-with-sma-how-body-composition-may-be-a-biomarker-of-motor-function-in-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Being Spontaneous With SMA &amp; How Body Composition May be a Biomarker of Motor Function in SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Spontaneity can be difficult when you have SMA. Sometimes it even takes planning. Forums moderator DeAnn Runge shares how she does it and is looking for advice on how to be even more spontaneous.
SMA News Today’s multimedia associate, Price Wooldridge, discusses how body composition may be a biomarker of motor function in SMA patients.
Are you interested in learning more about spinal muscular a...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1583712000" data-format="short_date">Mar 09, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7523952-maintaining-long-distance-friendships-mda-executive-s-discussion-of-gene-therapies"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Maintaining Long-Distance Friendships &amp; MDA Executive’s Discussion of Gene Therapies
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about maintaining long-distance friendships, particularly with people in the SMA community.
SMA News Today’s multimedia associate, Price Wooldridge, details an MDA executive’s discussion of gene therapies, SMN2 gene modifiers, and the challenges in treating SMA.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://sm...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1583452800" data-format="short_date">Mar 06, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7521866-celebrating-rare-disease-day-2020-with-whatmakesmeraresma-how-music-plays-a-big-part-in-life"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Celebrating Rare Disease Day 2020 with #WhatMakesMeRareSMA &amp; How Music Plays a Big Part in Life
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
February 29th was recognized as Rare Disease Day across the world. SMA News Today columnists shared what this day meant to them. A social media campaign was also successful in bringing awareness to rare diseases and celebrating #WhatMakesMeRareSMA.
Also, forums Director Kevin Schaefer shares how music plays a big part in his life in his latest column.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1583280000" data-format="short_date">Mar 04, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
7m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7520601-53-interview-with-alyssa-silva"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36177747/75x75/c 75w, https://audioboom.com/i/36177747/150x150/c 150w, https://audioboom.com/i/36177747/300x300/c 300w, https://audioboom.com/i/36177747/600x600/c 600w, https://audioboom.com/i/36177747/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #c9926d; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36177747/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
#53 - Interview with Alyssa Silva
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In episode 53, host Kevin Schaefer interviews our very own Alyssa Silva. Alyssa is from Cumberland, Rhode Island, and she is a columnist and forums moderator here at SMA News Today. She’s also the founder of the nonprofit organization Working on Walking. Throughout this conversation, she talks about growing up with SMA Type 1, her college experiences, writing, and more.
Are you interested in le...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
44m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1583193600" data-format="short_date">Mar 03, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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44m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7519523-public-interactions-with-people-with-disabilities-muscular-dystrophy-association-helping-others"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Public Interactions with People With Disabilities &amp; Muscular Dystrophy Association Helping Others
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
When it comes to public interactions with people who have disabilities there are no set rules. As someone who has a disability, DeAnn shares her thoughts on this topic.
Also, listen to SMA News Today’s multimedia associate, Price Wooldridge, discuss how the Muscular Dystrophy Association leads in helping others with care centers, research, and a summer camp.
Are you interested in learning more ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
8m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1583107200" data-format="short_date">Mar 02, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
8m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7517684-risdiplam-success-in-treating-sma-type-1-babies-in-firefish-study-kevin-s-spinraza-injection"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Risdiplam Success in Treating SMA Type 1 Babies in FIREFISH Study &amp; Kevin&#39;s Spinraza Injection
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about his most recent Spinraza injection and SMA News Today’s multimedia associate, Price Wooldridge, discusses the Risdiplam success in treating SMA Type 1 babies in the FIREFISH study.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1582848000" data-format="short_date">Feb 28, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7515198-talking-about-rare-disease-day-accessible-parking-sleepovers-with-sma-and-product-reviews"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Talking About Rare Disease Day &amp; Accessible Parking, Sleepovers with SMA and Product Reviews
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about the upcoming Rare Disease Day, and what it means to him.
Also, DeAnn Runge shares the latest activity going on in the forums. Among the topics being discussed are accessible parking, sleepovers and product reviews.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1582675200" data-format="short_date">Feb 26, 2020</span></span>
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<a class="text-decoration-none" href="/posts/7512790-the-discovery-of-a-potential-new-sma-genetic-modifier-having-a-great-deal-of-strength"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
The Discovery of a Potential New SMA Genetic Modifier &amp; Having a Great Deal of Strength
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Having gone through a life threatening ordeal, forums moderator DeAnn Runge knows despite being physically weak she has a great deal of strength. As a reminder she has a little blue notebook.
SMA News Today’s multimedia associate, Price Wooldridge, discusses the discovery of a potential new SMA genetic modifier.
Are you interested in learning more about spinal muscular atrophy? If so, please vi...
</div>
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9m
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<span><span class="js-time" data-epochtime="1582502400" data-format="short_date">Feb 24, 2020</span></span>
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<a class="text-decoration-none" href="/posts/7511051-how-a-csf-protein-profile-may-help-predict-spinraza-responses-in-late-onset-sma-patients"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How a CSF Protein Profile May Help Predict Spinraza Responses in Late-Onset SMA Patients
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer talks about some of the trending topics in the SMA News Today forums.
Also, SMA News Today’s multimedia associate, Price Wooldridge, discusses how a CSF protein profile may help predict Spinraza responses in late-onset SMA patients.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
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7m
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<span><span class="js-time" data-epochtime="1582243200" data-format="short_date">Feb 21, 2020</span></span>
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7m
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<a class="text-decoration-none" href="/posts/7508848-kevin-schaefer-reads-his-week-s-motivational-post-katie-napiwocki-s-comeback-as-a-columnist"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Kevin Schaefer Reads His Week’s Motivational Post &amp; Katie Napiwocki&#39;s Comeback as a Columnist
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Forums Director Kevin Schaefer reads from this week’s motivational post in the SMA News Today forums and we&#39;re also happy to welcome Katie Napiwocki back into the rotation of SMA News Today columnists! In her latest column, Peering Through the Fog of Fear, she explains why she took a break from writing about SMA and how she came to the decision to stop her Spinraza treatments.
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5m
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<span><span class="js-time" data-epochtime="1582070400" data-format="short_date">Feb 19, 2020</span></span>
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<a class="text-decoration-none" href="/posts/7507878-52-luisa-palazola-and-rare-disease-day-2020"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
52 - Luisa Palazola and Rare Disease Day 2020
</h5>
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In episode 52, Kevin Schaefer talks with his coworker Luisa Palazola, a Community Manager for SMA News Today. Luisa is from Memphis, Tennessee, and she has another rare genetic condition called cystic fibrosis. During this conversation, she talks about her story and advocacy work, what she’s learned about SMA through her work here, and the upcoming event Rare Disease Day.
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<span><span class="js-time" data-epochtime="1581984000" data-format="short_date">Feb 18, 2020</span></span>
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<a class="text-decoration-none" href="/posts/7506944-how-magnetic-rods-may-help-scoliosis-in-children-with-sma-living-with-caution-not-fear"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
How Magnetic Rods May Help Scoliosis in Children with SMA &amp; Living With Caution, Not Fear
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Finding the balance between living cautiously and fearfully can be challenging. Forums moderator DeAnn Runge shares how she navigates that delicate balance.
Also, SMA News Today’s multimedia associate, Price Wooldridge, discusses how magnetic rods may be an alternative treatment to correct scoliosis in children with SMA.
Are you interested in learning more about spinal muscular atrophy? If so, ...
</div>
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7m
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<span><span class="js-time" data-epochtime="1581897600" data-format="short_date">Feb 17, 2020</span></span>
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7m
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<a class="text-decoration-none" href="/posts/7504992-early-access-program-from-roche-for-sma-therapy-risdiplam-in-europe"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36098775/75x75/c 75w, https://audioboom.com/i/36098775/150x150/c 150w, https://audioboom.com/i/36098775/300x300/c 300w, https://audioboom.com/i/36098775/600x600/c 600w, https://audioboom.com/i/36098775/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36098775/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Early Access Program From Roche for SMA Therapy Risdiplam in Europe
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
SMA News Today’s multimedia associate, Price Wooldridge, discusses an early access program from Roche for SMA therapy Risdiplam in Europe and forums Director Kevin Schaefer talks about forming friendships with his caregivers, and why he thinks this is important.
Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
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<span><span class="js-time" data-epochtime="1581638400" data-format="short_date">Feb 14, 2020</span></span>
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5m
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<a class="text-decoration-none" href="/posts/7502724-accessible-travel-becoming-friends-with-your-caregivers-and-the-importance-of-exercise-with-sma"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/36087815/75x75/c 75w, https://audioboom.com/i/36087815/150x150/c 150w, https://audioboom.com/i/36087815/300x300/c 300w, https://audioboom.com/i/36087815/600x600/c 600w, https://audioboom.com/i/36087815/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #474747; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/36087815/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
Accessible Travel, Becoming Friends With Your Caregivers and The Importance of Exercise With SMA
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Some recent topics being discussed on the forums include accessible travel and becoming friends with your caregivers. Also, Dose of DeAnn has a new episode where she collaborates with a community member to talk about the importance of exercise, and forums Director Kevin Schaefer talks about his time working for his college student newspaper.
Are you interested in learning more about spinal musc...
</div>
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6m
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<span><span class="js-time" data-epochtime="1581465600" data-format="short_date">Feb 12, 2020</span></span>
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