It's Your Community - June 19, 2016

Vanessa interviewed Adel DiOrio, chair of Education and Advocacy for the Spina Bifida Association of Michigan, about Spina Bifida and recent legislation (HB 5098). They talked about what is HB 5098, what it does and why the Spina Bifida Association is applauding its sponsorship. Also discussed was how the bill first started and how it's pro-information in focus, arming families and their care teams with readily accessible information during a critical decision-making period. Adel explained the type of information healthcare providers would and wouldn't provide in the past and the options or sources of information families would have to turn to in its absence. They also talked about the Michigan Walk-N-Roll for Spina Bifida, which is held at Waterford Oaks County Park in Waterford on September 24th. The Walk-N-Roll for Spina Bifida is a non-competitive walk that raises awareness about Spina Bifida and whose proceeds are used to support local community programs and services for all affected by Spina Bifida. For more information about Spina Bifida, the recent legislation and statistics, log on to: www.spinabifidaassociation.org.