Beth Johnston & Leigh Reynolds discuss the chapter programs
Episode 15, Jan 30, 2019, 05:48 PM
Beth Johnston and Leigh Reynolds, the dynamic duo who are spearheading the FSH Society’s national chapter program.
Led by volunteers and supported by FSH Society staff, the Chapter Program is our greatest opportunity to fund more research, connect more patients, and advance more progress. The FSH Society is investing in this program because we believe there is great power in community. Working together, we inspire each other to go farther and reach higher than we could going it alone.
Currently there are 12 chapters in development and five Walk & Roll to Cure FSHD events underway. Volunteer leaders from across the country have stepped up to make a very real difference for all those impacted. FSH Society staff is providing training, tools and support to ensure their success. And this is just the beginning; by 2020 the FSH Society plans to have 20 chapters from coast to coast.
On July 25th at 8pm Central, Beth and Leigh will speak about the new FSH Society Chapter program; how it was conceived, how it is being supported, and how you can get involved.