New draft policy for people with rare diseases a let down

Feb 29, 01:28 PM
Recently, the Ministry of Health released a draft policy on rare disease. The policy mentions providing a one-time financial assistance of 15 lakhs to patients with rare disease. It is seen as a major let down from the previous draft in 2017 which mentioned a 100 crore corpus with both state and central governments providing assistance to the corpus for an estimate 70 million people living with rare diseases. To discuss this and more, ahead of the rare disease day, Suno India Editor Padma Priya spoke with Host of our rare disease podcast 1 in 20000.