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<a class="text-decoration-none" href="/posts/8465062-transforming-disability-representation-in-the-film-industry-the-making-of-good-bad-things"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/41445333/75x75/c 75w, https://audioboom.com/i/41445333/150x150/c 150w, https://audioboom.com/i/41445333/300x300/c 300w, https://audioboom.com/i/41445333/600x600/c 600w, https://audioboom.com/i/41445333/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #092487; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/41445333/1400x1400/c" />
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117: Transforming Disability Representation in the Film Industry: The Making of Good Bad Things
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We’re thrilled to share a conversation with Danny Kurtzman and Shane Stanger, the duo behind Good Bad Things! Their film is currently making waves (and taking home awards!) in the festival circuit for its moving story as well as groundbreaking representation of disability. Danny, the film’s star, is an actor living with FSHD, and the story is inspired by his life and close friendship with Shane...
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38m
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<span><span class="js-time" data-epochtime="1709055791" data-format="short_date">Feb 27, 2024</span></span>
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38m
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<a class="text-decoration-none" href="/posts/8457060-fshd-radio-jane-nemke-founder-of-designs-to-thrive"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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116: FSHD Radio: Jane Nemke, Founder of Designs to Thrive
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In this episode, Tim sits down with Jane Nemke, an accredited International Association Color Consultant and the founder of Designs to Thrive. Jane shares her inspiring journey into Universal Design as a means to create flexible and age-friendly living spaces, driven by her personal experience with FSHD.

Through the lens of her own experiences and involvement with organizations like SAIL and T...
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<span class="numeric-tabular d-sm-none">
50m
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<span><span class="js-time" data-epochtime="1707829200" data-format="short_date">Feb 13, 2024</span></span>
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50m
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<a class="text-decoration-none" href="/posts/8444884-fshd-radio-with-marisa-spain"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/41336917/75x75/c 75w, https://audioboom.com/i/41336917/150x150/c 150w, https://audioboom.com/i/41336917/300x300/c 300w, https://audioboom.com/i/41336917/600x600/c 600w, https://audioboom.com/i/41336917/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/41336917/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
115: FSHD Radio with Marisa Spain
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Join host Tim Hollenback for a special conversation with Marisa Spain. Marisa, known for Disabled in Nature, her YouTube channel and Instagram, discusses living with Early On-Set FSHD, barriers to receiving mobility devices and assistance, and accessibility in nature and outdoor environments. Share your thoughts, or post questions in the comments section. You can also listen to the episode on y...
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53m
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<span><span class="js-time" data-epochtime="1706191200" data-format="short_date">Jan 25, 2024</span></span>
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53m
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<a class="text-decoration-none" href="/posts/8433415-fshd-radio-community-profiles-with-chelsea-moeller"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
114: FSHD Radio: Community Profiles with Chelsea Moeller
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Join host Tim Hollenback and special guest Chelsea Moeller for a discussion of living with FSHD, from diagnosis to trial participation. Tim also teases some updates to FSHD Radio.

On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experien...
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45m
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<span><span class="js-time" data-epochtime="1705446620" data-format="short_date">Jan 16, 2024</span></span>
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45m
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<a class="text-decoration-none" href="/posts/8422615-project-mercury-a-global-effort-in-fshd-treatment-delivery"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
113: Project Mercury, A Global Effort in FSHD Treatment Delivery
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In this episode, join Tim as we wrap up the year with a profound discussion on the future of FSHD treatment and advocacy. Guest Ken Kahtava, Chief Business Officer of the FSHD Society, delves into Project Mercury, a groundbreaking initiative aiming to revolutionize access to therapies, improve clinical trials, and engage the FSHD community globally. From disease progression modeling to the coll...
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20m
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<span><span class="js-time" data-epochtime="1703764800" data-format="short_date">Dec 28, 2023</span></span>
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20m
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<a class="text-decoration-none" href="/posts/8415394-community-profiles-michael-osborne-an-fshd-connection-on-the-baseball-field"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
112: Community Profiles: Michael Osborne - An FSHD Connection on the Baseball Field
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In this episode, Tim chats with Michael Osborne, a fellow Milwaukeean and baseball coach living with FSHD. Michael and Tim share the story of how they met by chance on the baseball field and what it means to come across another person who understands the experience of having FSHD. Michael, a dad of three and business owner, also shares his diagnosis story and the impact FSHD has had within his ...
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40m
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<span><span class="js-time" data-epochtime="1702408180" data-format="short_date">Dec 12, 2023</span></span>
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40m
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<a class="text-decoration-none" href="/posts/8408916-my-cause-my-cleats-with-emma-weatherley"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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111: My Cause My Cleats with Emma Weatherley
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FSHD is in the national spotlight! Emma Weatherley, Managing Director of FSHD Global, joins Tim to share exciting news: Michael Dickson of the Seattle Seahawks is raising FSHD awareness. The NFL player has chosen FSHD Global, our Australian counterpart and fellow Project Mercury member, as his nominated charity for the “My Cause My Cleats” campaign, which encourages NFL players to support meani...
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18m
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<span><span class="js-time" data-epochtime="1701349200" data-format="short_date">Nov 30, 2023</span></span>
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18m
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<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8405386-thanksgiving-special"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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110: Thanksgiving Special
</h5>
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Happy Thanksgiving! We’re so grateful to have the privilege to serve the FSHD community. This special Thanksgiving broadcast is our way of saying thank you to everyone who helps make our community so strong and allows us to keep moving closer toward treatments and a cure.
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1hr 15m
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<span><span class="js-time" data-epochtime="1700744400" data-format="short_date">Nov 23, 2023</span></span>
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1hr 15m
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<a class="text-decoration-none" href="/posts/8381849-fshd-radio-show-community-profiles-donna-russo-actress-dancer-choreographer"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
109: FSHD Radio Show Community Profiles: Donna Russo - Actress, Dancer, Choreographer
</h5>
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This month, we welcome actress, dancer, and choreographer Donna Russo. A performer with FSHD and Turner Syndrome, Donna has graced the stage in various productions, including Alvin and the Chipmunks and the Magic Camera, as Alvin. Her versatility extends to the world of television and film, where she has left her mark on numerous projects. Notably, Donna plays the lead in the international web ...
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50m
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<span><span class="js-time" data-epochtime="1696935600" data-format="short_date">Oct 10, 2023</span></span>
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50m
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<hr class="mvn mhs text-black-50 opacity-25">
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<a class="text-decoration-none" href="/posts/8375094-fshd-radio-hot-off-the-press-mel-hayes-of-fulcrum-with-a-reach-trial-update"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
108: FSHD Radio Hot off the Press: Mel Hayes of Fulcrum with a REACH Trial Update
</h5>
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Earlier this month, Fulcrum Therapeutics confirmed the completion of patient enrollment in the Phase 3 REACH clinical trial for losmapimod, a potential groundbreaking therapy for FSHD. Mel Hayes, Chief Operating Officer of Fulcrum sat down with Tim to discuss what this exciting milestone means and fill us in on the latest from Project Mercury.

Catch a new Hot off the Press episode on the 4th T...
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<span><span class="js-time" data-epochtime="1695895200" data-format="short_date">Sep 28, 2023</span></span>
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12m
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<a class="text-decoration-none" href="/posts/8365781-fshd-radio-show-community-profiles-jenny-and-tony-teel-thriving-in-an-interabled-marriage"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
107: FSHD Radio Show Community Profiles: Jenny and Tony Teel, Thriving in an Interabled Marriage
</h5>
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This month, Tim talks with guests Jenny and Tony Teel! Tony is affected by FSHD, and this dynamic married couple runs a popular YouTube channel where they share valuable information and provide encouragement within the context of their interabled relationship. Subscribe to their YouTube channel at https://www.youtube.com/@jennyandtony

Catch our Community Profiles episodes on the 2nd Tuesday of...
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&bull;
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<span><span class="js-time" data-epochtime="1694520000" data-format="short_date">Sep 12, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
50m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8355795-fshd-radio-hot-off-the-press-max-adler-on-the-la-walk-roll"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
106: FSHD Radio Hot off the Press: Max Adler on the LA Walk &amp; Roll
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Max Adler, a long-time friend of the FSHD Society, sits down with Tim to talk about the LA Walk &amp; Roll! Listen to hear what the Walk &amp; Roll means to Max and learn about the exciting things in store for the Los Angeles Walk. Max has a supporting role in Good Bad Things, and the film’s star Danny Kurtzman, who lives with FSHD, and director Shane Stanger will be at the LA Walk &amp; Roll on September ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
13m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1692880200" data-format="short_date">Aug 24, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
13m
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</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8346656-fshd-radio-show-community-profiles-ryan-levinson-sailor-fshd-voyager"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
105: FSHD Radio Show Community Profiles: Ryan Levinson, Sailor &amp; FSHD Voyager
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month, Tim got the chance to sit down with Ryan Levinson, a world traveler and legend in the FSHD Community. Ryan talks with Tim about sailing around the world, staying disciplined, and how to approach self-defense when you live with FSHD. Don’t miss this motivating conversation!

Diagnosed with FSHD as a teenager, Ryan&#39;s unwavering determination has never allowed his diagnosis to stand in...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 1m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1691499000" data-format="short_date">Aug 08, 2023</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 1m
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</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8341017-fshd-radio-hot-off-the-press-the-2023-walk-roll-to-cure-fshd-with-beth-johnston"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
104: FSHD Radio Hot off the Press: the 2023 Walk &amp; Roll to Cure FSHD with Beth Johnston
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
The 2023 Walk &amp; Roll to Cure FSHD is just around the corner, and Beth Johnston, the FSHD Society&#39;s Chief Community Engagement Officer, has all the details you need to know! Listen to hear about what the Walk &amp; Roll is, how to get involved, and what’s new this year.

Led entirely by dozens of dedicated volunteers and supported by a small staff, the Walk &amp; Roll to Cure FSHD is the only signature ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
20m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1690459200" data-format="short_date">Jul 27, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
20m
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8332642-fshd-radio-show-community-profiles-with-beverly-weurding-of-the-wheelchair-dancers-organization"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
103: FSHD Radio Show Community Profiles: with Beverly Weurding of the Wheelchair Dancers Organization
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
For this month’s Community Profiles episode, we welcome Beverly Weurding, the visionary behind the Wheelchair Dancers Organization. Diagnosed with Limb Girdle Muscular Dystrophy at the age of 55, Beverly was navigating life as a new wheelchair user at a time when many contemplate retirement. Empowered by her physical therapist’s support, she founded the Wheelchair Dancers Organization, enabling...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
50m
</span>
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&bull;
</span>
<span><span class="js-time" data-epochtime="1689076500" data-format="short_date">Jul 11, 2023</span></span>
</div>
</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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50m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8321643-fshd-radio-hot-off-the-press-irc-2023-recap"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
102: FSHD Radio Hot off the Press: IRC 2023 Recap
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
You may have seen our updates from Milan last week, but what exactly is the International Research Congress? The FSHD Society’s annual FSHD IRC is the premier global conference focused exclusively on FSHD research. This conference brings together clinicians, researchers, pharmaceutical industry leaders, and scientists to discuss new developments and collaborate with one another. Check out this ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
38m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1687437300" data-format="short_date">Jun 22, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
38m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8320537-world-fshd-day-mel-hayes-fulcrum-therapeutics"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Mel Hayes, Fulcrum Therapeutics
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In today’s final episode, Mel Hayes, Chief Operating Officer of Fulcrum Therapeutics, discusses the REACH trial and other Fulcrum updates!

We are so grateful for all of today&#39;s exceptional guests and our gracious host, Tim Hollenback, for their dedication to the FSHD Community and for raising awareness on #WorldFSHDDay.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
11m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1687302000" data-format="short_date">Jun 20, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
11m
</div>
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8320536-world-fshd-day-dr-nizar-saad-nationwide-children-s-hospital"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Dr. Nizar Saad, Nationwide Children&#39;s Hospital
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In our next #WorldFSHDDay episode, Dr. Nizar Saad of Nationwide Children’s Hospital discusses his research and FSHD Lab Day, which is coming up on July 8th. We have one more episode coming up!
</div>
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<span class="numeric-tabular d-sm-none">
14m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1687296600" data-format="short_date">Jun 20, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
14m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8320534-world-fshd-day-raj-badiani-fshd-uk"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Raj Badiani, FSHD UK
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Next up in our series of #WorldFSHDDay special episodes is Raj Badiani of FSHD UK! Raj discusses the patient experience and FSHD UK’s incredible work towards clinical trial readiness.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
14m
</span>
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&bull;
</span>
<span><span class="js-time" data-epochtime="1687291200" data-format="short_date">Jun 20, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
14m
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</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8320532-world-fshd-day-emma-weatherley-fshd-global"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Emma Weatherley, FSHD Global
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Emma Weatherley, Managing Director of FSHD Global chats with Tim from Down Under! Emma has been living with FSHD for years, and she spoke with Tim about Australia’s efforts with FSHD Global and Project Mercury. Stay tuned for more #WorldFSHDDay episodes!
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
42m
</span>
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&bull;
</span>
<span><span class="js-time" data-epochtime="1687278600" data-format="short_date">Jun 20, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
42m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8320528-world-fshd-day-dr-corrie-erasmus-pediatric-neurologist"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Dr. Corrie Erasmus, Pediatric Neurologist
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Up next in our special #WorldFSHDDay interviews is Dr. Corrie Erasmus. Dr. Erasmus is a pediatric neurologist at Radboud University Medical Center in the Netherlands. Listen to hear about her research and the crucial importance of studying Pediatric FSHD.
</div>
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<span class="numeric-tabular d-sm-none">
16m
</span>
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</span>
<span><span class="js-time" data-epochtime="1687273200" data-format="short_date">Jun 20, 2023</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
16m
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8320526-world-fshd-day-jack-gerblick-board-member-atlanta-chapter-leader"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Jack Gerblick, Board Member &amp; Atlanta Chapter Leader
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Up next for #WorldFSHDDay, Jack Gerblick, FSHD Society board member chats with Tim. A dedicated volunteer who is impacted by FSHD, Jack is also the Community Development &amp; Engagement Committee Chair and the leader of the Atlanta Chapter. Listen to hear about the Atlanta Chapter watch party tonight as the King and Queen buildings are lit orange for FSHD awareness!
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<span><span class="js-time" data-epochtime="1687266000" data-format="short_date">Jun 20, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8320497-world-fshd-day-neil-camarta-fshd-canada-foundation"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40662277/75x75/c 75w, https://audioboom.com/i/40662277/150x150/c 150w, https://audioboom.com/i/40662277/300x300/c 300w, https://audioboom.com/i/40662277/600x600/c 600w, https://audioboom.com/i/40662277/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #fffefe; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40662277/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
101: World FSHD Day: Neil Camarta, FSHD Canada Foundation
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<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
It’s World FSHD Day! In our first special mini-episode of the day, Neil Camarta talks with Tim about the growth of the FSHD Canada Foundation and the future of Project Mercury. Stay tuned for more special episodes!
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<span><span class="js-time" data-epochtime="1687260600" data-format="short_date">Jun 20, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8316447-fshd-radio-show-community-profiles-lauren-lolo-spencer-actress-disability-advocate"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
100: FSHD Radio Show Community Profiles: Lauren &quot;Lolo&quot; Spencer - Actress &amp; Disability Advocate
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We’re thrilled to have Lauren “Lolo” Spencer as our Community Profiles guest this month! Lauren plays Jocelyn on the popular HBO series The Sex Lives of College Girls and is the founder and CEO of Live Solo, a lifestyle brand dedicated to young adults with disabilities who seek independence and self-empowerment. Lauren is a phenomenal actress, model, author, and disability advocate, and her new...
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<span><span class="js-time" data-epochtime="1686657720" data-format="short_date">Jun 13, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8306795-hot-off-the-press-plans-for-world-fshd-day-2023"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
99: Hot off the Press: Plans for World FSHD Day 2023
</h5>
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Did you know that June 20th is World FSHD Day? Check out this Hot off the Press episode to learn how to participate and what we have planned for this year! Tim will get you caught up on things like the Orange Slice Selfies campaign, special programming for the FSHD Radio Show, the International Research Congress in Milan, Project Mercury, and more. We have a lot in store for the month of June!
...
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<span><span class="js-time" data-epochtime="1685016000" data-format="short_date">May 25, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8297397-fshd-radio-show-community-profiles-all-about-adoption-with-deb-calhoun-and-jim-mary-albert"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
98: FSHD Radio Show Community Profiles: All About Adoption with Deb Calhoun and Jim &amp; Mary Albert
</h5>
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Family planning and adoption can be difficult subjects for anyone to navigate, especially in the face of FSHD. In this episode, Deb Calhoun and Jim &amp; Mary Albert discuss the topic of adoption and FSHD, as well as the hurdles involved in parenting while differently abled. We hope you enjoy this insightful conversation about a subject that often doesn’t get the attention it deserves!

Catch our C...
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<span><span class="js-time" data-epochtime="1683633600" data-format="short_date">May 09, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8289016-fshd-radio-hot-off-the-press-amanda-hill-on-the-new-era-of-clinical-trials"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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97: FSHD Radio Hot off the Press: Amanda Hill on the New Era of Clinical Trials
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April’s Hot off the Press guest is Amanda Hill, Director of Research and Patient Engagement at the FSHD Society. We are entering a new era of clinical trials in FSHD research. This is an exciting time, and Amanda sat down with Tim to explain everything you need to know when considering getting involved in clinical trials.

We’d like to hear from you about your clinical trial experiences! Here i...
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<span><span class="js-time" data-epochtime="1682596800" data-format="short_date">Apr 27, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8278595-community-profiles-with-hip-hop-artist-apex-frazier"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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96: Community Profiles with Hip-Hop Artist Apex Frazier
</h5>
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This month’s community profiles guest is Apex Frazier. Apex is a hip-hop artist living in Southern Ontario who has battled FSHD for the past five years. In this episode, Apex talks with Tim about dealing with the aggressive onset of FSHD while still in high school and how his experiences have shaped his identity as an individual and as a musician.

Catch our Community Profiles episodes on the 2...
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<span><span class="js-time" data-epochtime="1681216200" data-format="short_date">Apr 11, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8268577-fshd-radio-hot-off-the-press-dr-amy-halseth-answers-your-questions-about-avidity-s-fortitude-trial"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
95: FSHD Radio Hot off the Press: Dr. Amy Halseth Answers Your Questions about Avidity’s FORTITUDE Trial
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Have questions about Avidity’s upcoming FORTITUDE trial? This month, our Hot off the Press guest is Amy Halseth, PhD, of Avidity Biosciences. Amy is the Executive Director of Clinical Development and serves as the Program Lead for the company’s FSHD program. Avidity Biosciences has announced its plans to launch FORTITUDE, a Phase 1 / 2 clinical trial. Amy sat down Leigh Reynolds of the FSHD Soc...
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<span><span class="js-time" data-epochtime="1679572800" data-format="short_date">Mar 23, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8263274-community-profiles-chip-wilson"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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94: Community Profiles: Chip Wilson
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This month, we’re honored to have entrepreneur and philanthropist Chip Wilson as our Community Profiles guest! Chip is the founder of Lululemon and has committed $100 million to targeted FSHD research through his mission-driven organization, SOLVE FSHD. In this episode, Chip talks with Tim about living with FSHD and the future of SOLVE FSHD.

Catch our Community Profiles episodes on the 2nd Tue...
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<span><span class="js-time" data-epochtime="1678798800" data-format="short_date">Mar 14, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8251769-fshd-radio-hot-off-the-press-with-jamshid-arjomand-phd"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
93: FSHD Radio Hot off the Press with Jamshid Arjomand, PhD
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month’s Hot off the Press guest is Jamshid Arjomand, PhD. Our Chief Science Officer is back on to talk about the Therapeutic Accelerator and the many ways the FSHD Society works to ensure the success of clinical drug trials. Jamshid explains how we help address gaps in clinical trial readiness and how you can get involved.

For a more in-depth look at the Therapeutic Accelerator, check out...
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<span><span class="js-time" data-epochtime="1677160800" data-format="short_date">Feb 23, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8246813-community-profiles-paul-ronson"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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92: Community Profiles: Paul Ronson
</h5>
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This month’s guest is Paul Ronson of Suffolk, England, a radio host who lives with FSHD. He is a presenter for East Point Radio, a station broadcast throughout the UK, and during his extensive radio career, Paul has helped discover music artists like Howard Jones. In this episode, he shares stories about his fascinating career and how he has adapted to life with FSHD.

Catch our Community Profi...
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<span><span class="js-time" data-epochtime="1676383200" data-format="short_date">Feb 14, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8235309-fshd-radio-hot-off-the-press-with-jared-jacobsen"><div class="Episode-list-grid card-body pan">
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<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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91: FSHD Radio Hot off the Press with Jared Jacobsen
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Our Hot off the Press guest this month is filmmaker Jared Jacobsen. Jared has volunteered with the FSHD Society for many years, and his film studio, Stephen Jake Video Productions is named after his late father, Stephen Jacobsen, who had FSHD. He speaks with Tim about his award-winning short film, “The Reinventor,” which documents the many transformations made by Amy Bekier, painter and founder...
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<span><span class="js-time" data-epochtime="1674741600" data-format="short_date">Jan 26, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8226692-fshd-radio-show-community-profiles-with-tim-hollenback"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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90: FSHD Radio Show: Community Profiles with Tim Hollenback
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To kick off the new season, we turn the tables on FSHD Radio Host, Tim Hollenback, putting him in the guest seat!

Catch our Community Profiles episodes on the 2nd Tuesday of each month. Listen on your favorite podcast player or watch on YouTube or Facebook!
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51m
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<span><span class="js-time" data-epochtime="1673362800" data-format="short_date">Jan 10, 2023</span></span>
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<a class="text-decoration-none" href="/posts/8211467-fshd-radio-end-of-year-episode-with-mark-stone"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/40051875/75x75/c 75w, https://audioboom.com/i/40051875/150x150/c 150w, https://audioboom.com/i/40051875/300x300/c 300w, https://audioboom.com/i/40051875/600x600/c 600w, https://audioboom.com/i/40051875/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/40051875/1400x1400/c" />
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89: FSHD Radio: End of Year Episode with Mark Stone
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Join us for the last FSHD Radio Show of 2022! For this special episode, Tim and FSHD Society’s CEO, Mark Stone, discuss all that has happened in the FSHD community this past year. Mark shares exciting updates in FSHD research and development in 2022, reviewing all that has happened in the FSHD community this year, as well as taking a look ahead to 2023.

Catch our Community Profiles episodes on...
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1hr 2m
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<span><span class="js-time" data-epochtime="1670943600" data-format="short_date">Dec 13, 2022</span></span>
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1hr 2m
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<a class="text-decoration-none" href="/posts/8197543-fshd-radio-hot-off-the-press-with-leigh-reynolds"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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88: FSHD Radio Hot off the Press with Leigh Reynolds
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This month, our Hot off the Press guest is Leigh Reynolds. Leigh is FSHD Society’s Chief Program Strategist. She discusses updates about all things FSHD research and developments in the research field and gives a preview of our Giving Tuesday Radiothon! Don’t miss this great conversation with Leigh and our host, Tim Hollenback.

You can find the Needs Assessment Survey at: https://www.fshdsocie...
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36m
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<span><span class="js-time" data-epochtime="1668697200" data-format="short_date">Nov 17, 2022</span></span>
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8189371-community-profiles-kristin-duquette"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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87: Community Profiles: Kristin Duquette
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This month, our guest is Kristin Duquette. She is a five-time American Paralympic Record Holder in swimming and the former US Team Captain for the 2010 Greek Open. She is living with FSHD and is a disability advocate. Listen in to her great conversation with Tim to hear about her amazing journey.

Catch our Community Profiles episodes on the 2nd Tuesday of each month. Listen on your favorite po...
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1hr 5m
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<span><span class="js-time" data-epochtime="1667916000" data-format="short_date">Nov 08, 2022</span></span>
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1hr 5m
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8182361-hot-off-the-press-with-ally-roets-and-kristin-zwickau"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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86: Hot Off the Press with Ally Roets and Kristin Zwickau
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This month  we have two great guests, Ally Roets and Kristin Zwikau, who are leading the charge with our early-onset and pediatric FSHD families. In addition to coordinating our international early-onset chapter, Ally hosts our monthly Parents Roundtable and hotline. They&#39;re with us on this episode to talk about the M.O.V.E. Study and the great need for pediatric families to get involved.
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26m
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<span><span class="js-time" data-epochtime="1666875600" data-format="short_date">Oct 27, 2022</span></span>
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26m
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8172345-community-profiles-ranae-beeker"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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85: Community Profiles: Ranae Beeker
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This month, our guest is Ranae Beeker. Ranae is a retired RN, one of leaders of new Women on Wellness virtual group and a volunteer with FSHD Society, and a person with FSHD. This photo shows Ranae at the 2022 Pacific Northwest Walk &amp; Roll to Cure FSHD! Listen in to her great conversation with our host Tim!

In this episode, Ranae talks about our Women on Wellness group. You can join the next m...
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<span><span class="js-time" data-epochtime="1665493200" data-format="short_date">Oct 11, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8160929-fshd-radio-hot-off-the-press-with-amanda-hill"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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84: FSHD Radio Hot off the Press with Amanda Hill
</h5>
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This month, our Hot off the Press guest is Amanda Hill. We are excited to introduce you to Amanda – she is FSHD Society’s newest staff member (https://www.fshdsociety.org/about-us/our-team/) as the Director of Research and Patient Engagement. Amanda has been part of the FSHD Society community for many years as the Colorado Chapter Director (https://www.fshdsociety.org/connect/local-chapters/) a...
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17m
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<span><span class="js-time" data-epochtime="1663848000" data-format="short_date">Sep 22, 2022</span></span>
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17m
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<a class="text-decoration-none" href="/posts/8156539-community-profiles-actress-madison-ferris"><div class="Episode-list-grid card-body pan">
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83: Community Profiles: Actress Madison Ferris
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This month, our guest is Broadway actress Madison Ferris! She played Laura Wingfield in The Glass Menagerie on Broadway, and she was the first wheelchair user to play a lead on Broadway! You may have also seen her on an episode of Law and Order: Special Victims Unit. She is living with FSHD and we can&#39;t wait to share this special episode with you!

You can see Madison in the play All of Me at B...
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<span><span class="js-time" data-epochtime="1663066800" data-format="short_date">Sep 13, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8152164-special-edition-episode-national-walk-roll-to-cure-fshd-ambassador-max-adler"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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82: Special Edition Episode: National Walk &amp; Roll to Cure FSHD Ambassador, Max Adler!
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Join our host Tim with our special guest, actor &amp; advocate Max Adler! Listen in to hear more about Max and why the Walk &amp; Roll to Cure FSHD means so much to him.

Max launched Team Mighty Max because he watched his Mom, Lisa, and Grandma Ruth struggle with FSH Muscular Dystrophy. Determined to do all he could so that no one would have to go through this ever again, he joined forces with the FSH...
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14m
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<span><span class="js-time" data-epochtime="1662401296" data-format="short_date">Sep 05, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8145362-fshd-radio-hot-off-the-press-with-beth-johnston-all-about-the-walk-roll"><div class="Episode-list-grid card-body pan">
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81: FSHD Radio Hot off the Press with Beth Johnston: All About the Walk &amp; Roll!
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Our Hot off the Press guest this month is Beth Johnston (https://www.fshdsociety.org/about-us/our-team/) , FSHD Society&#39;s Chief Community Engagement Officer. She will be speaking all about the 2022 Walk &amp; Roll to Cure FSHD (https://www.fshdsociety.org/fsh-events/walk-roll-to-cure-fshd/) - what it is, how you can be involved, and most importantly, why it matters! Together, we move toward a CURE ...
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<span><span class="js-time" data-epochtime="1661425200" data-format="short_date">Aug 25, 2022</span></span>
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18m
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<a class="text-decoration-none" href="/posts/8135981-community-profiles-claire-szabo-cassella"><div class="Episode-list-grid card-body pan">
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80: Community Profiles: Claire Szabo-Cassella
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This month, our Community Profiles guest is Claire Szabo-Cassella of Phoenix, Arizona, writer of the Red Scooter Diaries blog. Claire and her husband Lou had a great conversation with our host, Tim. We can&#39;t wait to share it with you!

You can find the video interview of this episode on our YouTube page (https://youtu.be/4ZP_Jod1UJk) .

For details about our Radio Show, click here: https://www....
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<div class="text-muted df align-items-baseline gap-2 fs-8">
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55m
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<span><span class="js-time" data-epochtime="1660064700" data-format="short_date">Aug 09, 2022</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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55m
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<a class="text-decoration-none" href="/posts/8128700-fshd-radio-hot-off-the-press-with-leigh-reynolds"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
79: FSHD Radio Hot Off the Press with Leigh Reynolds
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Leigh Reynolds, Chief Program Strategist for the FSHD Society, joins Tim to talk about all the activities patients and families can get involved in now! Learn more about PACT (Patients Accelerating Clinical Trials) initiatives such as Test FSHD and the True Cost of FSHD study, the Walk &amp; Roll to Cure FSHD and more. 

www.fshdsociety.org/testfshd

www.fshdsociety.org/true-cost

www.fshdsociety.o...
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34m
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<span><span class="js-time" data-epochtime="1659056400" data-format="short_date">Jul 29, 2022</span></span>
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34m
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<a class="text-decoration-none" href="/posts/8062791-community-profiles-dylan-king"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
78: Community Profiles: Dylan King
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month&#39;s guest for our Community Profiles podcast episode is Dylan King, a Marine Corps veteran who lives with FSHD. Dylan shares his diagnosis story, how his FSHD affected his military career, and how he is using his love of fitness to thrive.

He is excited to share his story and his fitness expertise with the FSHD community, and we can&#39;t wait to share Tim and Dylan&#39;s great conversation w...
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1hr
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<span><span class="js-time" data-epochtime="1657638000" data-format="short_date">Jul 12, 2022</span></span>
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1hr
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<a class="text-decoration-none" href="/posts/8090754-fshd-radio-hot-off-the-press-with-june-kinoshita"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
77: FSHD Radio Hot Off the Press with June Kinoshita
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Tim speaks with June Kinoshita, FSHD Society&#39;s Senior Director of Research and Patient Education, about our True Cost of FSHD survey
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20m
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<span><span class="js-time" data-epochtime="1653610440" data-format="short_date">May 27, 2022</span></span>
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20m
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<a class="text-decoration-none" href="/posts/8062372-community-profiles-michaela-walker"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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76: Community Profiles: Michaela Walker
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<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
If you want to learn more about the FSHD CTRN and the MOVE and MOVE+ studies, this Radio Show episode is for you! This month&#39;s guest for our Community Profiles podcast episode is Michaela Walker, Research Project Manager for the FSHD CTRN and the MOVE and MOVE+ studies. Michaela will tell us all about the CTRN, who can be involved the MOVE study, and why it&#39;s so important for the FSHD community...
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48m
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<span><span class="js-time" data-epochtime="1652194800" data-format="short_date">May 10, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8065852-hot-off-the-press-with-dr-david-younger"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
75: Hot off the Press with Dr. David Younger
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest is Dr. David Younger, speaking to us about why he has chosen to become one of our most active community members. David volunteers his time, talents, and treasure to support the work of the FSHD Society in a myriad of ways and we are all the better for it!

Our short-form Hot off the Press episodes bring you the latest and greatest from the FSHD Society, including research updates, upc...
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20m
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<span><span class="js-time" data-epochtime="1651158000" data-format="short_date">Apr 28, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8062177-community-profiles-christel-rohrs"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832259/75x75/c 75w, https://audioboom.com/i/39832259/150x150/c 150w, https://audioboom.com/i/39832259/300x300/c 300w, https://audioboom.com/i/39832259/600x600/c 600w, https://audioboom.com/i/39832259/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832259/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
74: Community Profiles: Christel Rohrs
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month&#39;s guest for FSHD Radio: Community Profiles is Christel Rohrs. Christel shares her story with FSHD and how she continues to thrive while living with her diagnosis.

For details about our Radio Show, click here: https://www.fshdsociety.org/fshd-radio/
 (https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbVEwcEpwYnJRdDkteEJRc2hZS01IYWhCeG1ld3xBQ3Jtc0ttQm5WazZUT...
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1hr 4m
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<span><span class="js-time" data-epochtime="1649775600" data-format="short_date">Apr 12, 2022</span></span>
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