FSHD Radio Hot off the Press with Jared Jacobsen

Our Hot off the Press guest this month is filmmaker Jared Jacobsen. Jared has volunteered with the FSHD Society for many years, and his film studio, Stephen Jake Video Productions is named after his late father, Stephen Jacobsen, who had FSHD. He speaks with Tim about his award-winning short film, “The Reinventor,” which documents the many transformations made by Amy Bekier, painter and founder of the FSHD Society’s San Diego chapter, while living with FSHD. We are excited to share Jared’s story and more details on the making of this authentic and moving film!