44: An interview with Annie Kennedy, head of policy, advocacy, and patient engagement at the EveryLife Foundation for Rare Diseases
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Annie Kennedy, head of policy, advocacy, and patient engagement at the EveryLife Foundation for Rare Diseases. This Washington, DC-based nonprofit focuses on eliminating the diagnostic odyssey for rare disease, promoting regulations that speed up therapeutic development, and improving access to approved rare-disease therapies.
15m
•
Aug 21, 2022