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<a class="text-decoration-none" href="/posts/8049420-hot-off-the-press-with-anna-gilmore"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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73: Hot off the Press with Anna Gilmore
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In this episode of the FSHD Radio Show, our host Tim will be talking with Anna Gilmore, FSHD Society&#39;s Regional Director for Community Engagement. Learn all about the upcoming FSHD Connect Conference, the 29th Annual FSHD Society International Research Congress, and the FSHD World Alliance meeting - all happening in June 2022 in Orlando, FL! Learn how YOU can participate and take a peek behind ...
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<span><span class="js-time" data-epochtime="1648134000" data-format="short_date">Mar 24, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8044241-community-profiles-lexi-pappas"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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72: Community Profiles: Lexi Pappas
</h5>
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This month&#39;s guest for FSHD Radio: Community Profiles is Lexi Pappas. Lexi has been an advocate for the FSHD community for many years and is a Walk &amp; Roll leader as well as a GenZ of FSHD admin. We can’t wait to share Tim and Lexi&#39;s great conversation!

Follow GenZ of FSHD on Instagram: https://www.instagram.com/genz_of_fshd/

For details about our Radio Show, click here: https://www.fshdsociet...
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53m
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<span><span class="js-time" data-epochtime="1646797996" data-format="short_date">Mar 09, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8037583-hot-off-the-press-with-beth-johnston"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
71: Hot off the Press with Beth Johnston
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In this episode of the FSHD Radio Show, our host Tim will be talking with Beth Johnston, FSHD Society’s Chief Community Engagement Officer. Learn all about the Chapter Program at FSHD Society and hear all the latest FSHD Society news with Tim and Beth!

Get involved: https://www.fshdsociety.org/fshd-events-calendar/

Find your local chapter: https://www.fshdsociety.org/connect/local-chapters/

...
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24m
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<span><span class="js-time" data-epochtime="1645737611" data-format="short_date">Feb 24, 2022</span></span>
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<a class="text-decoration-none" href="/posts/8027963-community-profiles-artist-rick-whitehead"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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70: Community Profiles: Artist Rick Whitehead
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Join us for this episode as our host Tim interviews Rick Whitehead, an artist who has FSHD. Rick has been aware of his FSHD since his teens. He has been in five clinical trials and is “trying to be on the front line and as proactive as I can be.”

Listen in to Tim and Rick&#39;s conversation as they discuss Rick&#39;s story with FSHD, his work as an artist, and his experience with the importance of bei...
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<span><span class="js-time" data-epochtime="1644361207" data-format="short_date">Feb 08, 2022</span></span>
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49m
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</a></div>
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<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8020408-hot-off-the-press-with-jamshid-arjomand-phd"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
69: Hot off the Press with Jamshid Arjomand, PhD
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Join the conversation with our Chief Science Officer, Jamshid Arjomand, PhD! This is the first of our Hot off the Press Radio Show episodes. 

These short-form episodes will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD. These episodes will release on the 4th Thursday of eve...
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<span><span class="js-time" data-epochtime="1643311978" data-format="short_date">Jan 27, 2022</span></span>
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<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8011968-actor-comedian-steve-way"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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68: Actor, comedian Steve Way
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We are excited about our special guest this month, Steve Way. Steve is an actor and comedian – you can currently find him on the show Ramy on Hulu. He was born with Muscular Dystrophy and is an advocate for disability awareness. We can’t wait to share Tim and Steve’s great conversation! You can learn more about Steve at his website here (https://www.thesteveway.com/) .
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50m
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<span><span class="js-time" data-epochtime="1642027499" data-format="short_date">Jan 12, 2022</span></span>
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<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/8005031-guest-sam-ray"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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67: Guest Sam Ray
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
 Sam Ray, a 15-year-old, in Tucson, AZ, who is living with Early-onset FSHD. Sam will talk with Tim about how his FSHD motivated him to explore exoskeleton technology, and fostered his love of flying drones. Sam will share the story of his struggles to obtain an adaptive driver’s license and talk about what it is like to be a high school student with FSHD.
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 2m
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<span><span class="js-time" data-epochtime="1640797922" data-format="short_date">Dec 29, 2021</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 2m
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7989520-giving-tuesday-radiothon-hour-4-with-guests-jamshid-arjomand-phd-ranae-beeker-and-molly-white"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/38699567/75x75/c 75w, https://audioboom.com/i/38699567/150x150/c 150w, https://audioboom.com/i/38699567/300x300/c 300w, https://audioboom.com/i/38699567/600x600/c 600w, https://audioboom.com/i/38699567/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #481f1e; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/38699567/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
66: Giving Tuesday Radiothon hour 4 with guests Jamshid Arjomand; PhD, Ranae Beeker and Molly White
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In the fourth and final hour we are jamin with CSO Jamshid Arjomand; PhD about the positive outlook of 2022. Then Ranae Beeker makes a grand entrance as she shares her story and how the new Women Of Wellness group started. Finally, Molly White helps us end the event with great news from our sponsor Dyne Therapeutics.
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1hr 6m
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<span><span class="js-time" data-epochtime="1638399538" data-format="short_date">Dec 01, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 6m
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7989515-giving-tuesday-radiothon-hour-3-with-guests-kiley-higgs-heloise-hoffmann-and-steven-blier"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/38699567/75x75/c 75w, https://audioboom.com/i/38699567/150x150/c 150w, https://audioboom.com/i/38699567/300x300/c 300w, https://audioboom.com/i/38699567/600x600/c 600w, https://audioboom.com/i/38699567/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #481f1e; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/38699567/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
66: Giving Tuesday radiothon hour 3 with guests Kiley Higgs, Heloise Hoffmann and Steven Blier
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We welcome in amazing guests for hour 3 of the Radiothon. Kiley Higgs discusses the importance of the CTRN. Heloise Hoffman inspires us with her story and how GenZ is making a positive impact on our community. Steven Blier, pianist and Julliard teacher, finishes the hour with his story of adapting in trying times with FSHD.
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 6m
</span>
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<span><span class="js-time" data-epochtime="1638399230" data-format="short_date">Dec 01, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7989513-giving-tuesday-radiothon-hour-2-with-guests-scott-harper-jacob-wise-and-anna-gilmore"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/38699567/75x75/c 75w, https://audioboom.com/i/38699567/150x150/c 150w, https://audioboom.com/i/38699567/300x300/c 300w, https://audioboom.com/i/38699567/600x600/c 600w, https://audioboom.com/i/38699567/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #481f1e; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/38699567/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
66: Giving Tuesday Radiothon hour 2 with guests Scott Harper, Jacob Wise and Anna Gilmore
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This is hour 2 of the Giving Tuesday Radiothon. We welcome Scott Harper, Jacob Wise and Anna Gilmore. These guests bring the energy and positivity as we talk about research, growth in the chapters and so much more!
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 8m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1638398906" data-format="short_date">Dec 01, 2021</span></span>
</div>
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</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 8m
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7989508-giving-tuesday-radiothon-hour-1-with-guests-mark-stone-haviva-ner-david-olga-mitelman-and-shari"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/38699567/75x75/c 75w, https://audioboom.com/i/38699567/150x150/c 150w, https://audioboom.com/i/38699567/300x300/c 300w, https://audioboom.com/i/38699567/600x600/c 600w, https://audioboom.com/i/38699567/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #481f1e; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/38699567/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
66: Giving Tuesday Radiothon hour 1 with Guests Mark Stone, Haviva Ner David, Olga Mitelman and Sharif Tabebordbar
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This is hour 1 of the Giving Tuesday Radiothon. We kick things off with Mark Stone, FSHD Society CEO; Haviva Ner David; Olga Mitelman, MD; and Sharif Tabebordbar.
</div>
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<span class="numeric-tabular d-sm-none">
1hr 8m
</span>
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&bull;
</span>
<span><span class="js-time" data-epochtime="1638398563" data-format="short_date">Dec 01, 2021</span></span>
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</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 8m
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</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7977380-fshd-society-cso-jamshid-arjomand-phd"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
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<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
65: FSHD Society CSO Jamshid Arjomand, PhD
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode&#39;s guest is our chief science officer, Jamshid Arjomand, PhD! He’ll be sharing the latest and greatest in FSHD research, including news from the Clinical Trial Research Network investigators meeting that just happened last week in Virginia, what’s going on in drug development (that he’s allowed to divulge publicly), and more!
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
55m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1636569408" data-format="short_date">Nov 10, 2021</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
55m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7963745-talking-about-early-onset-of-fshd"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
64:  Talking about early-onset of FSHD  
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month’s guests are Ally Roets and her son, Sam Ray. Together with Kristin Zwickau, they are co-leading our early-onset FSHD chapter (https://www.fshdsociety.org/early-onset-chapter/) for families that have members who developed symptoms of FSHD in early childhood (https://www.fshdsociety.org/what-is-fshd/early-onset-fshd/) . This form of FSHD brings unique challenges. We seek to connect ea...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 5m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1634684204" data-format="short_date">Oct 19, 2021</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 5m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7938720-walk-n-roll-with-max-adler-and-leigh-reynolds"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
63: Walk N Roll with Max Adler and Leigh Reynolds
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode, the featured guest is our National Walk &amp; Roll Ambassador, actor Max Adler, who will be talking about his FSHD advocacy and this year’s Walk &amp; Roll. We hope he’ll also share some juicy details about upcoming acting and directing projects. Max will be joined by the FSHD Society’s Leigh Reynolds.
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 7m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1631185307" data-format="short_date">Sep 09, 2021</span></span>
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</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 7m
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</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7934828-heloise-hoffmann-of-genz-of-fshd"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
62: Heloise Hoffmann of GenZ of FSHD
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This Radio Show episode features Heloise Hoffmann, one of the youth advocates who are leading our new group of GenZers (and GenZs at heart). She will be discussing the mission of this group and where you can find and engage with them.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1630594680" data-format="short_date">Sep 02, 2021</span></span>
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</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 6m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7887789-jamin-with-jamshid-arjomand-phd-cso-fshd-society"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
61: Jamin&#39; with Jamshid Arjomand, PhD, CSO FSHD Society
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest this month is our very own Jamshid Arjomand, PhD (https://www.fshdsociety.org/about-us/our-team/jamshid-arjomand-phd/) , chief science officer. He’ll update you about the latest research and drug development advances (that he’s allowed to talk about). If you have questions about FSHD research, now’s your chance to get them answered!
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
55m
</span>
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<span><span class="js-time" data-epochtime="1623843632" data-format="short_date">Jun 16, 2021</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
55m
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<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7865862-life-coach-who-lives-with-fsh-muscular-dystrophy-lori-brant"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
60:  Life coach who lives with FSH muscular dystrophy, Lori Brant
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
“Our guest this month is Lori Brant, a life coach who lives with FSH muscular dystrophy. “I know it can seem impossible to feel peaceful and calm when having worrisome thoughts or waiting for the next shoe to drop. Being stressed all the time is exhausting,” she says. “The truth is that I, like most people, believed that if they could just find a cure, or if I repeated enough affirmations, I wo...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 2m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1621023640" data-format="short_date">May 14, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 2m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7845227-haviva-ner-david-author-of-hope-valley"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
59: Haviva Ner-David, author of Hope Valley
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Haviva Ner-David is an ordained rabbi and interfaith-interspiritual minister, with a doctorate in philosophy and an M.F.A in Creative Writing. She runs Shmaya: A Mikveh for Mind, Body and Soul, where she officiates ritual immersion ceremonies and offers group workshops. A certified spiritual director with a specialty in dreamwork, she works with individuals and couples. Rabbi Ner-David is the a...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
58m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1618502855" data-format="short_date">Apr 15, 2021</span></span>
</div>
</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
58m
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7819314-featured-guest-comedian-carlos-romero"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
58: Featured guest comedian Carlos Romero
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest for this episode is Carlos Romero, who has amazed us over the past several years by becoming a national paraclimbing champion and being featured in People magazine (https://people.com/celebrity/how-two-half-their-size-winners-overcame-major-obstacles-to-lose-357-lbs/) for losing 225 pounds following his FSHD diagnosis in 2012. He recently started his own podcast, Crappy Comics (https:...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 35m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1615388105" data-format="short_date">Mar 10, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 35m
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</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7796103-featured-guest-sue-drescher-sharegiver-caregiver"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
57: Featured guest Sue Drescher, Sharegiver/Caregiver
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode features Sue Drescher, co-director of the Society&#39;s Bay Area chapter and co-moderator of the monthly Sharegiver Hour, a virtual support group for family members who are providing care for a person with FSHD. Sue will share her story and why she decided to start the Sharegiver Hour.…
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
53m
</span>
<span class="d-sm-none">
&bull;
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<span><span class="js-time" data-epochtime="1612926118" data-format="short_date">Feb 10, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
53m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7770650-featured-guest-country-musician-marynn-taylor"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
56: Featured guest country musician MaRynn Taylor
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
We are kicking off the new year with special guest MaRynn Taylor (https://www.marynntaylor.com/) , a rising star in country music. The Michigan native signed with Nashville-based Black River Entertainment (https://en.wikipedia.org/wiki/Black_River_Entertainment) in 2019 and released her first single, “Dads and Daughters,” a beautiful, heart-tugging song dedicated to her father, who has FSH musc...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
54m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1610506782" data-format="short_date">Jan 13, 2021</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
54m
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7753071-fitness-gurus-mitch-wade-and-bill-herzberg"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
55: Fitness gurus Mitch Wade and Bill Herzberg
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
In our final episode for 2020, we are joined by our fabulous fitness gurus Mitch Wade and Bill Herzberg for their exercise insights. Stock up on ideas to up your fitness game in the new year! Mitch is looking for your input on stating a FSHD exercise group. Please email Mitch at mwadefit@gmail.com. Let him know if you are interested and what time a group training session would work best for you...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
54m
</span>
<span class="d-sm-none">
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</span>
<span><span class="js-time" data-epochtime="1608174417" data-format="short_date">Dec 17, 2020</span></span>
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</div>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
54m
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</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7747923-missy-dixon-mental-health-counselor-at-the-university-of-utah"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
54: Missy Dixon, mental health counselor at the University of Utah
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest this week is Missy Dixon, mental health counselor at the University of Utah who has worked with FSHD families. She’ll talk about coping mechanisms for adults and children living with FSHD, as well as for their family members. We’ll also discuss the importance of social networks and support. Missy gives us great tools to use when handling our Mental Fitness.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 6m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1607569939" data-format="short_date">Dec 10, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 6m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7742712-aclu-of-nj-eddie-barocas"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
53: ACLU of NJ, Eddie Barocas
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
On this episode of the FSHD Society radio show we welcome Eddie Barocas. Ed is an extraordinary champion for underdogs, who until recently served as Legal Director of the American Civil Liberties Union of New Jersey. You can read more about him on our blog. (https://www.fshdsociety.org/2020/06/29/eddie-mechanics-was-my-secret-to-success/) He will talk about his amazing life and how FSHD may hav...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
52m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1606964336" data-format="short_date">Dec 03, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
52m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7738243-the-thanksgiving-episode"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
52: The Thanksgiving episode
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
On this episode of the FSHD Society radio show we share our thanks. Tim hosts with input from the listeners great Thanksgiving stories. Stories about Thanksgiving cooking disasters and what to be thankful for in this covid-19 time. Plus we touch base on what is coming up in the FSHD Society community.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
51m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1606359478" data-format="short_date">Nov 26, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
51m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7733429-fitness-gurus-mitch-wade-and-bill-herzberg"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
51: Fitness gurus Mitch Wade and Bill Herzberg
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode we welcome in again Bill and Mitch. We talk again about the physical side of FSHD. We key in on keeping a routine and dealing with the change in season. It is tough to keep yourself moving and healthy as it gets cold out. Mitch and Bill give some great advice to help. They also talk about specific workouts to help with what Mitch calls the &quot;second core&quot;. Your ankles and feet are ke...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
48m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1605754874" data-format="short_date">Nov 19, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
48m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7728250-psychologist-and-mindfulness-coach-dr-jen-egert"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
50: Psychologist and mindfulness coach, Dr. Jen Egert
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This week we welcome back Dr. Jen Egert, psychologist and mindfulness coach. This episode Dr. Jen Egert goes through a mindful practice. She teaches us how to get started in mindfulness and the amazing benefits it offers. Just listening to her will calm you down. She offers wonderful insights into our lives and minds.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 1m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1605150644" data-format="short_date">Nov 12, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 1m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7717227-the-fitness-tips-with-mitch-wade-and-bill-hertzberg"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
49: The fitness tips with Mitch Wade and Bill Hertzberg
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guests on this episode are Mitch Wade and Bill Hertzberg, our fitness gurus. They’ll be demonstrating some of the workouts that have helped Bill with his FSHD symptoms and answer your questions. Bill and Mitch focus in on balance and stability. I ask the question can a person with FSHD work to regain their agility? Mitch&#39;s answer may surprise you. All this and more!
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
55m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1603937445" data-format="short_date">Oct 29, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
55m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7711662-molly-white-vp-medical-communications-advocacy-at-dyne-therapeutics"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
48: Molly White, VP, Medical Communications &amp; Advocacy at Dyne Therapeutics
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest on this episode is Molly White, Vice President, Medical Communications &amp; Advocacy at Dyne Therapeutics (https://www.dyne-tx.com/) . In our webinar last week, White discussed her perspective on the impact of the FSHD community’s role in therapy development (https://www.fshdsociety.org/therapeutic-accelerator/) . This is your chance to ask any questions you may have. White previously se...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
59m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1603332391" data-format="short_date">Oct 22, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
59m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7705992-kent-drescher-phd-co-director-of-the-fshd-society-s-bay-area"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
47: Kent Drescher, PhD, co-director of the FSHD Society’s Bay Area
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest on this episode is Kent Drescher, PhD, co-director of the FSHD Society’s Bay Area chapter and a retired clinical psychologist. He will talk about acceptance and commitment therapy (ACT), which has been shown in a clinical trial to be beneficial to people with FSHD. He will discuss his own experience of living with FSHD, and share his past work working with veterans. Kent dives deep in...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 1m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1602727667" data-format="short_date">Oct 15, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 1m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7700436-josh-bergmann-multi-talented-singer-songwriter-mandolinist"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
46: Josh Bergmann, multi-talented singer-songwriter-mandolinist
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
special guest is Josh Bergmann, multi-talented singer-songwriter-mandolinist. His band Rose Valley Thorns’ website (https://therosevalleythorns.com/) states that “Joshua Bergmann’s immense passion for music brought The Rose Valley Thorns together. While pouring himself into playing mandolin and leading the vocals for this band, Joshua is also a respectable multi-instrumentalist, performer, and ...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
57m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1602122754" data-format="short_date">Oct 08, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
57m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7695311-guests-are-jenny-and-tony-interabled-relationship"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
45: Guests are Jenny and Tony, interabled relationship
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guests are Jenny and Tony, a married couple who share information and offer encouragement on their YouTube channel in the context of their interabled relationship. Tony’s life with FSHD has set them on a journey to discover better ways to problem solve together and live life to the fullest. Learn more about them here (https://www.fshdsociety.org/2020/08/23/youtube-series-on-interabled-relat...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 1m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1601518106" data-format="short_date">Oct 01, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 1m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7690020-guests-kathryn-wagner-md-phd-and-doris-leung-md-phd"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
44: Guests, Kathryn Wagner, MD PhD and Doris Leung, MD PhD
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guests tonight are, Kathryn Wagner, MD PhD, and her colleague Doris Leung, MD PhD. Dr. Wagner has seen patients with FSH muscular dystrophy for more than 20 years. As director of the Center for Genetic Muscle Disorders (https://www.kennedykrieger.org/patient-care/centers-and-programs/center-for-genetic-muscle-disorders) at the Kennedy Krieger Institute and a Professor of Neurology and Neuro...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
51m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1600912978" data-format="short_date">Sep 24, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
51m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7679060-maintaining-peace-of-mind-with-dr-jen-egert"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
43: Maintaining peace of mind with Dr. Jen Egert 
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guest tonight is Dr. Jen Egert, a psychologist living with FSHD, who will discuss strategies for maintaining peace of mind in these stressful times. We discuss the details of living with emotions. I share my personal struggle with anxiety and negativity. Dr. Egert and also discuss the topic of FSHD defining us. This is a very valuable show for all those that listen. This is not just an epis...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
57m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1599703631" data-format="short_date">Sep 10, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
57m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7673653-walk-n-roll-event-with-beth-johnston-leigh-reynolds"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
42: Walk n&#39; Roll event with Beth Johnston &amp; Leigh Reynolds
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode of the FSHD Society Radio Show we chat with Beth Johnston and Leigh Reynolds. We talk about the FSHD Society’s biggest fundraising event of the year, the Walk &amp; Roll to Cure FSHD on September 12. Tune in to learn how you can participate. To join the Walk N Roll event https://www.fshdsociety.org/fsh-events/walk-roll-to-cure-fshd/
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
55m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1599098749" data-format="short_date">Sep 03, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
55m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7668387-dr-anthony-romeo"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
41: Dr. Anthony Romeo
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
On this episode of the FSHD Society Radio Show the guest is Dr. Anthony Romeo. Dr. Romeo is a distinguished orthopedic surgeon who is one of the leading experts on surgery to stabilize the shoulder blade (scapula) in individuals with FSH muscular dystrophy. Read more about his impressive career on his website (https://www.anthonyromeomd.com/) . He was last week’s FSHD University webinar speaker...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
59m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1598493929" data-format="short_date">Aug 27, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
59m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7661943-fitness-episode-with-bill-herzberg-and-mitch-wade"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
40: Fitness episode with Bill Herzberg and Mitch Wade
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
Our guests on this episode are our favorite exercise mavens, Bill Herzberg and Mitch Wade. They’ll be sharing their experiences with workouts that have improved Bill’s strength, range of motion, and endurance. Each month Bill and Mitch talk to us about a exercise that will help us stay moving. This episode is about the shoulders. Visit Mitch at @mitchwadePDX on Instagram.
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
54m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1597889059" data-format="short_date">Aug 20, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
54m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7650597-qigong-instructor-frank-hanley"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
39: Qigong instructor, Frank Hanley
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This week’s guest is Frank Hanley, the FSHD Society’s South Carolina Chapter Director.  Frank is a certified Qigong instructor (pronounced  chee gong) and Kung Fu teacher.  Frank will discuss how he uses his daily martial arts practice (qigong and kung fu) to fight back against FSH. 
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
55m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1596683134" data-format="short_date">Aug 06, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
55m
</div>
</div>
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</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7644425-howard-chabner-fshd-society-board-vice-chair-and-retired-disability-rights-lawyer-melissa-riess"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
38: Howard Chabner, FSHD Society board vice-chair and retired disability rights lawyer, Melissa Riess
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This week’s guests are Howard Chabner, FSHD Society board vice-chair and retired disability rights lawyer, Melissa Riess, a staff attorney at Disability Rights Advocates (https://dralegal.org/) in Berkeley, and Dani Liptak and Carden Wyckoff, who have been outspoken advocates for disability rights in the community. We’ll reflect on the impact of the ADA and the many challenges that remain in th...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 4m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1596075327" data-format="short_date">Jul 30, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 4m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7620888-romesh-subramanian-and-molly-white-of-dyne-therapeutics"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
37: Romesh Subramanian and Molly White of Dyne Therapeutics
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode guests are Romesh Subramanian and Molly White of Dyne Therapeutics. Dyne recently announced (https://www.fshdsociety.org/2020/05/20/dyne-therapeutics-ramps-up-its-fshd-program/) that it is ramping up its FSHD therapeutic development program.  Romesh brings extensive drug discovery, translational medicine and leadership experience to Dyne. He formerly led new modality discovery rese...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
59m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1593623381" data-format="short_date">Jul 01, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
59m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7598482-fshd-patient-and-fitness-trainer-bill-herzberg-mitch-wade"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
36: FSHD patient and fitness trainer, Bill Herzberg &amp; Mitch Wade
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month’s guests are Bill Herzberg and Mitch Wade, FSHD patient and fitness trainer, respectively, who are making waves in our community with their weekly fitness webinars (https://zoom.us/webinar/register/WN_KVKBW8AAQGO1nmTNZTHT_g) . They’ll be discussing the strategies they have worked out over the years to successfully address a variety of issues that have resulted from Bill’s FSH muscula...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
57m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1591236896" data-format="short_date">Jun 04, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
57m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7576082-featured-guest-lynn-stevens-of-goodwill-n-louisiana"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
35: Featured guest Lynn Stevens of Goodwill N. Louisiana
</h5>
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Our guest this week is Lynn Stevens (https://www.linkedin.com/in/lynn-stevens-0589285/) , Director of Workplace Development for Goodwill of North Louisiana. Lynn has been serving the nonprofit sector for over 20 years. She has extensive knowledge, expertise in leading and guiding many types of local, regional and national organizations. “My passion is serving others and creating positive change...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 1m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1588817609" data-format="short_date">May 07, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 1m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7576077-fshd-society-board-member-carden-wyckoff"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
35: FSHD Society board member Carden Wyckoff
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This month’s guest is Carden Wyckoff, FSHD Society board member and supreme champion of accessibility and leader who laughs in the face of limits. With her own podcast, “Freewheelin’ with CardenOfMilk (https://www.stitcher.com/podcast/freewheelin-with-cardenofmilk) “, Carden (@cardenofmilk) shines a new light on accessibility and thriving through any challenge.
Carden Wyckoff, podcaster
“Living...
</div>
<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 1m
</span>
<span class="d-sm-none">
&bull;
</span>
<span><span class="js-time" data-epochtime="1588817396" data-format="short_date">May 07, 2020</span></span>
</div>
</div>
</div>
<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
<div class="fs-8 numeric-tabular text-nowrap text-muted phs">
1hr 1m
</div>
</div>
</div>
</a></div>
<hr class="mvn mhs text-black-50 opacity-25">
<div class="card rounded-0 border-0 pas qa-audio-clip-overview" style="--bs-card-bg: transparent;">
<a class="text-decoration-none" href="/posts/7558717-sequester-series-goran-kralj-singer-song-writer"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
34: Sequester series-Goran Kralj, singer-song writer
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This special episode highlights an interview with a great friend of the show Goran Kralj. Goran is the lead singer of the band Gufs and has solo work as well. Goran&#39;s resent song, &quot;When This Is Over&quot; keys in on the current time we are all coping with. It is a positive song when we needed it most. I had the pleaseure to talk with Goran about the song creation and other music he is working on.
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<span class="numeric-tabular d-sm-none">
19m
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<span><span class="js-time" data-epochtime="1587057006" data-format="short_date">Apr 16, 2020</span></span>
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19m
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33:  Julie Cohen, MSc, a senior genetic counselor
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Join host Tim Hollenback and our guest this month is Julie Cohen, MSc, a senior genetic counselor at the Kennedy Krieger Institute and an Assistant Professor of Neurology at Johns Hopkins University School of Medicine. Julie received her Master’s degree from the Johns Hopkins/National Institutes of Health Genetic Counseling Training Program. With more than a decade of experience, Julie speciali...
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1hr 1m
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<span><span class="js-time" data-epochtime="1583377727" data-format="short_date">Mar 05, 2020</span></span>
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<div class="d-none d-sm-grid" style="justify-self: center; align-items: center;">
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1hr 1m
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<a class="text-decoration-none" href="/posts/7497250-a-chat-with-justin-turftank-vanlanduit"><div class="Episode-list-grid card-body pan">
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32: A chat with Justin TurfTank VanLanduit
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Join host Tim Hollenback for a chat with Justin TurfTank VanLanduit, who was diagnosed with FSHD in 2013 at the age of 33.  “It was a blow to be told I have a degenerative neuromuscular disease that has no cure,” Justin recalls. “I’ve always been very active with sports, but worse than the realization that some of the things I enjoy could be taken away was thinking about how my diagnosis could ...
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<div class="text-muted df align-items-baseline gap-2 fs-8">
<span class="numeric-tabular d-sm-none">
1hr 8m
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<span><span class="js-time" data-epochtime="1580959174" data-format="short_date">Feb 06, 2020</span></span>
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31: Scott Harper, PhD
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Join radio host Tim Hollenback on the show this month is FSHD research rock star Scott Harper, PhD, a leader in the effort to develop gene therapy. Harper is principal investigator at the Center for Gene Therapy at the Research Institute at Nationwide Children’s Hospital, and associate professor of pediatrics at the Ohio State University College of Medicine, Columbus, Ohio. He is a molecular bi...
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1hr 4m
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<span><span class="js-time" data-epochtime="1578540094" data-format="short_date">Jan 09, 2020</span></span>
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FSHD Society Radio Telethon 2019 episode 3
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This episode features three interviews from the 2019 Giving Tuesday telethon event. First interview is with Kiley Higgs. Kiley is the Kansas City FSHD Society Chapter director and she is the manager for the clinical trial research network with UK Medical Center. The second interview is with Dave Lukas, The Chicagoland chapter director. Finally Beth Johnston, FSHD Society&#39;s Chief Community Devel...
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50m
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<span><span class="js-time" data-epochtime="1577653927" data-format="short_date">Dec 29, 2019</span></span>
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50m
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<a class="text-decoration-none" href="/posts/7464762-fshd-society-radio-telethon-2019-episode-2"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
FSHD Society Radio Telethon 2019 episode 2
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode highlights the interviews from the 2019 Giving Tuesday telethon event. Episode 2 features interviews with NFL Film&#39;s Director of Business, Alan Brown. Then a great conversation with Psychologist and mindfulness coach Jen Egert. Final interview is with the voice of the Brooklyn Nets Chris Carrino. 
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55m
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<span><span class="js-time" data-epochtime="1577578141" data-format="short_date">Dec 29, 2019</span></span>
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55m
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<a class="text-decoration-none" href="/posts/7464746-fshd-society-radio-telethon-2019-episode-1"><div class="Episode-list-grid card-body pan">
<div class="l-flex align-items-baseline gap-2 gap-md-3">
<img srcset="https://audioboom.com/i/39832456/75x75/c 75w, https://audioboom.com/i/39832456/150x150/c 150w, https://audioboom.com/i/39832456/300x300/c 300w, https://audioboom.com/i/39832456/600x600/c 600w, https://audioboom.com/i/39832456/1400x1400/c 1400w" sizes="(max-width: 400px) 64px, 96px" style="background-color: #4c181b; max-width: 96px; width: 15cqw;" class="js-img-bg ratio-square rounded-1" loading="lazy" src="https://audioboom.com/i/39832456/1400x1400/c" />
<div class="vstack gap-1 my-auto">
<h5 class="text-line-clamp text-line-clamp-3 balanced-h fs-6 fs-5-lg fw-normal mb-0">
FSHD Society Radio Telethon 2019 episode 1
</h5>
<div class="text-line-clamp text-line-clamp-3 balanced-p fs-8 text-muted text-break">
This episode highlights the first 3 interviews from the 2019 Giving Tuesday telethon event. This episode features interviews with FSHD Society&#39;s President and CEO, Mark Stone. FSHD Society&#39;s Chief Strategic Officer, June Kinoshita. The final interview is with Dr. Lou Kunkel. Dr. Kunkel is a renowned Harvard Scientist that discovered the Duchenne Muscular Dystrophy gene.
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45m
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<span><span class="js-time" data-epochtime="1577574949" data-format="short_date">Dec 28, 2019</span></span>
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45m
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