This month’s guests are Ally Roets
and her son, Sam Ray
. Together with Kristin Zwickau, they are co-leading our early-onset FSHD chapter
for families that have members who developed symptoms of FSHD in early childhood
. This form of FSHD brings unique challenges. We seek to connect early-onset families around the world through this chapter so that they can share their knowledge and advocate for research and treatments.