LISTEN: Mel Bolt has been campaigning for Spinraza to be made accessible to help her daughter Abbie - 22/05/2019
May 22, 2019, 05:10 AM
The mum of a #Kent teenager with a rare muscle disease says the decision to make a potentially life-extending drug available on the NHS is a dream come true.
Mel Bolt from #Minister has been campaigning for Spinraza to be made accessible to help her daughter, Abbie, who has spinal muscular atrophy.
The 15-year-old has battled with the incurable muscle-weakening condition since she was just two and is wheel-chair bound.