52 - Luisa Palazola and Rare Disease Day 2020
Feb 18, 2020, 12:00 AM
In episode 52, Kevin Schaefer talks with his coworker Luisa Palazola, a Community Manager for SMA News Today. Luisa is from Memphis, Tennessee, and she has another rare genetic condition called cystic fibrosis. During this conversation, she talks about her story and advocacy work, what she’s learned about SMA through her work here, and the upcoming event Rare Disease Day.