Sue and Alicia

Episode 1,   Apr 07, 2021, 09:30 AM

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In this episode of the Voices of AHP podcast, Alicia shares her experience of living with Acute Intermittent Porphyria (AIP) with Sue from the British Porphyria Association who also lives with AHP. They talk about Alicia’s initial symptoms and the journey to diagnosis. Since her diagnosis, Alicia has worked to increase awareness of AHP and has met other people living with porphyria around the UK.

Acute hepatic porphyria (AHP), a subset of porphyria, refers to a family of rare genetic diseases characterised by potentially life-threatening attacks and, for some people, chronic debilitating symptoms that negatively impact daily functioning and quality of life.1,2

This podcast was initiated and funded by Alnylam Pharmaceuticals and is available to the public for information purposes only; it should not be used for diagnosis or treating health problems or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further information and advice. The impact of AHP symptoms described in this podcast are based on the speaker’s personal experience and perspective of living with the condition, described in their own words. Not all people living with the condition will experience the same symptoms.

1. Anderson KE et al. Ann Intern Med. 2005 Mar 15;142(6):439-50.
2. Balwani M et al. Hepatology. 2017 Oct;66(4):1314-1322.

Job Code: AS1-UK-00004
Podcast Job Code: AS1-UK-00002
Date of Preparation: December 2020