Complex Diagnoses

On this week's show we are speaking once again with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two) 

Heeeeere's Kristine!

Allow me to introduce myself🦓My name is Kristine (kk). I am the CEO of RARE.™ A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred to me I could wake up sick and never get better. That I would lose everything I knew without noticing.

In the beginning of getting sick I experienced extreme isolation. I felt like I didn’t fit in anywhere. Among symptoms that have yet to have to be attributed to a known disease🧬I have been diagnosed with EDS , POTS, and Autoimmune Small Fiber Neuropathy Secondary to Unknown Connective Tissue Disease 🆗 That feels like a lot right? but I didn’t look sick and that made it really hard for not only me to accept but also the world around me 🌍

I created RARE.™ as a safe space for myself until I realized so many other rare disease fighters, chronic illness, chronic pain, invisible disease or any human needed that same thing. So I got to work and here we are. Together we can start to bridge the gap 🚧

🆗More about the RARE. Girl behind the brand; 

🥄I  am a fierce lover of Grey’s Anatomy. Meredith Grey is my person.

🥄You can be sure that I’ll be either listening to Taylor Swift or True Crime. 

🥄My favorite book is a Thesaurus

🥄I am a loyal Ticondaroga Pencil user

🥄I love to create & I am a huge nerd

 🥄My Wardrobe can easily be mistaken for your grandmas & I love it

Change Starts Here. Connect With RARE.™

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✉️ Reach Out 🔛 info@findyourrare.com