You know your body – why speaking up matters (Jay)

In this episode of the Breast Cancer Now podcast, Jay shares her journey working in cancer research to receiving a diagnosis of breast cancer herself. 

Jay opens up about discovering a lump in 2018 at age 47, navigating a stage 3 diagnosis, and dealing with chemotherapy, surgery and radiotherapy. Drawing on her science background, she also explains how understanding the system helped her advocate for herself and regain some sense of control. 

She reflects on the emotional realities of cancer, and the role of family, culture and her community in her experience. Jay also speaks about the challenges within the South Asian community, where cancer is often a taboo subject, and highlights the urgent need for better awareness and representation. 

Jay is now a strong advocate for health literacy and inclusion, and tells Laura about her dedication to empowering women to listen to their bodies, ask questions, and speak up in healthcare settings.

Breast Cancer Now support & information: https://breastcancernow.org
Clinical trials database: https://clinicaltrials.gov

Key topics:
01:11 Let's get to know Jay
02:19 Jay's background working in clinical trials
03:52 Jay is diagnosed with breast cancer
08:59 The loneliness of a breast cancer diagnosis and treatment
12:12 What Jay learned from her cancer diagnosis
16:19 The importance of self advocacy and health literacy
20:43 How Jay approached telling her parents about her cancer diagnosis
26:53 Jay 8 years on from diagnosis
28:38 Troubles with tamoxifen
31:33 Ways Jay deals with life after cancer treatment
34:45 Working towards better research representation in under-represented communities
37:44 Jay's work educating people about breast cancer
40:51 Cancer in the South Asian community
42:59 Improving cancer outcomes in Black and South Asian populations