Rare Care Podcast

161: An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still

160: An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis

158: An Interview With Hereditary Angioedema Expert Dr. Timothy Craig

158: An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS)

157: An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN

156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)

155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California

154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute

153: An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain

152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation

151: An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic

150: An Interview With Beloved Huntington Disease Activist Jimmy Pollard

149: An Interview With Clinical Psychologist Rosalind Kalb, PhD, of Can Do-MS

148: An Interview With Huntington Disease Patient Activist Tanita Allen

147: An Interview With Jean Elwing, MD, a Pulmonary Hypertension Expert at the University of Cincinnati

146: An Interview With Payel Gupta, MD, on the Importance of Social Media in Healthcare

145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association

144: An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Treat NMOSD

143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H

142: An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation

141: An Interview WIth Steve Van Wormer, Cofounder and Director of the Phaware Global Association

140: An Interview With Victor Test, MD, Chair of the Pulmonary Vascular Disease Program at Texas Tech School of Medicine in Lubbock

139: An Interview With Drew Harris, MD, Expert on Black Lung Disease

138: An Interview With Mahesh Desai, PhD, of the Luxembourg Institute of Health

137: An Interview With Karin Hoelzer, DVM, PhD, Senior Director of Policy and Regulatory Affairs at NORD

136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP)

135: An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls'

134: An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MS

133: An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA

133: An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS

132: An Interview With Michelle C. Werner, CEO of Alltrna

131: An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD

130: An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio

129: An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy

128: An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou

127: An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida

126: An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD)

125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis

125: An Interview With Sarah Glass, PhD, of the n-Lorem Foundation

124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis

123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation

122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome

121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD

120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema

119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy

118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association

117: An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy

116: An Interview With Seema Lalani, MD, Director of Project GIVE, a Pediatric Rare Disease Screening Program in the Rio Grande Valley of Texas

115: An Interview With Matt Trudeau of ITF Therapeutics, on Givinostat as a Therapy for Duchenne Muscular Dystrophy

114: An Interview With Thomas Holm Pedersen, PhD, Cofounder and CEO of Denmark's NMD Pharma