Rare Care Podcast

241: An Interview With Oncologist and Podcaster Kimberly Ku, MD, on 'Empathetic Communications'

240: An Interview With Christine Clemson, PhD, of Entrada Therapeutics

239: An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe

238: An Interview With Jim Palma, CEO of TargetCancer

237: An Interview With Dr. Paul Esteso on Cardiac Health in Duchenne

236: An Interview With Teresa Barnes, Founder of PF Warriors

235: An Interview WIth Dr. Martina Cornel, President of the European Society of Human Genetics

234: An Interview WIth Diane Zapursky Quale of the Bladder Cancer Advocacy Network

233: An Interview With AI Expert Dr. Laurah Turner on Artificial Intelligence in Medical Education

232: An Interview With John MacMahon, CEO of CytoKind, on the Benefits of Artificial Sunlight

231: An Interview With Dr. Eric Small, Former President of ASCO

230: An Interview With Jessie Dubief, Social Research Director at Eurordis, on Mental Health in Rare Diseases

229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation

229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation

228: An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society

227: An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation

226: An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program

225: An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator

224: An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest

223: An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease

222: An Interview With SMA Expert and Neurologist Dr. Kathryn Swoboda

221: An Interview With Dutch Neurologist Ewout Groen of SMA Europe

220: An Interview With Dr. Jaime Moore on Obesity Medications and Neuromuscular Disease

219: An Interview With Dr. Natalie Truba on the Psychological Aspects of Gene Therapy

218: An Interview With Donna Shipp on Her IgG4-RD Patient Journey

217: An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy Awareness

216: An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Foundation

215: An Interview With John Crowley, President and CEO of the Biotechnology Innovation Organization

214: An Interview With Dr. Hyun Kim, Director of the University of Minnesota's Interstitial Lung Disease Program

213: An Interview With Andrea Wilson-Woods, Founder of Blue Faery, a Nonprofit That Advocates for Patients With Hepatocellular Carcinoma

212: An Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Expert on Wilson Disease

211: An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma

210: An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 Disease

209: An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North Macedonia

208: An Interview With Wesley Michael, Founder of Rare Patient Voice

207: An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!

206: An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC

205: An Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo Green

204: An Interview With Jana Monaco, a NORD Patient Ambassador From Virginia

203: An Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided Medicine

202: An Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2d

201: An Interview With Rheumatologist Jinoos Yazdany on the Dangers of Artificial Intelligence

200: An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center

199: An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal

198: An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation

197: An Interview With Gabriela Romanow, Founder of Rare Vision, a Nonprofit That Helps Artists With Rare Neuroimmune Diseases

196: An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & Johnson

195: An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical Center

194: An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & Johnson

193: An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of Medicine