Patients as Research Partners
Involving patients in researching their own condition – it seems logical, so why is it not more common? Listen as Paul Evans discusses the benefits, challenges and future of including patients as research partners. With professionals, patients and policy leaders.
In this edition of Airing Pain, Paul Evans investigates the potential for patients to play an integral role in research, alongside the professionals. Through discussions with patients John and Mark both of whom are part of research groups, he sheds light on the importance of patients shaping the research and treatment of their own condition. From patients being included in directing their own treatment plan to actually influencing the direction of original scientific research, there are many benefits to their involvement.
- John Norton, patient
- Mark Farmer, patient
- Louise Trewern, member of the BPS Patient Liaison Committee
- Margaret Whitehead, past co-chair of the BPS Patient Liaison Committee
- Julie Ashworth, Senior Lecturer University of Keele and Honorary Consultant at the Community Pain Service with Midlands Partnership Foundation Trust.
- INVOLVE, National Institute for Health Research, https://www.invo.org.uk/
- National Voices, https://www.nationalvoices.org.uk/
- Citizen Science Association, https://www.citizenscience.org/
- BPS Patient Liaison Committee https://www.britishpainsociety.org/about/bps-committees/
- Proactive clinical Review of patients taking Opioid Medicines long-term for persistent Pain led by clinical Pharmacists in primary care Teams (PROMPPT) https://www.promppt.co.uk/.